arrow4 Comments
  1. Gina
    May 05 - 4:27 am

    Hi Cort,

    I’m currently awaiting test results from the German research doctors team at Charite Berlin that you have mentioned in your articles and blogs. I will share the blood/ lab results with you once I have those which should be in the next 6- 8 weeks. I’m anxious about the results and feel grateful that I was seen by these German doctors. Best to you and thank you for all the information about this debilitating illness that I have been affected by for the past 7 years.
    Gina
    Germany

  2. Gijs
    May 05 - 6:10 am

    I think low grade chronic EBV infection can be the cause for a subgroup. The study from Germany is underexposed.

  3. David Katcoff
    May 05 - 12:31 pm

    Thanks, Cort.
    This hypothesis seems good. I came down with ME/CFS in college and thought I had mono – that was decades ago. Ever since my immune system has been in high gear. Every afternoon I have to fight to stay awake before “recovering” somewhat in the evening, and I almost never get any other virus to any significant extent.
    The autoimmune response in this case must manifest itself as encephalitis, as found in the Japanese pet-scan study.
    As per the vit. D3 deficiency – I assume then that ME/CFS has a similar distributive pattern as MS, away from the equator. It’s probably a good idea to get more sunlight with this thing; it usually helps me.

  4. Joyce
    May 07 - 10:32 am

    I have had CFS/FM for 27 years & was a clinical virologist until I became so ill I had to stop working. We had an EBV research project going in our lab & when I became ill my staff did
    extensive testing to determine which, if any, viruses were active in my system. Strangely enough,
    I was seronegative for all herpes group viruses, including EBV. Since then I have seroconverted to
    CMV & am now positive for that, but repeated testing over the years has shown that I remain negative for EBV!

    Two of my staff also became ill at the same time. We were all exposed to a strange new adenovirus which was isolated in our lab & mishandled by some unauthorized personnel. I developed an adenovirus infection in my eyes accompanied by respiratory symptoms. Post-viral fatigue set in & that was the beginning of CFS for me.

    My infectious disease specialist gave me 3 IV immunoglobulin infusions that first year, to no avail.
    He also treated me for Lyme disease & that did not help.

    Thank you for your work, Cort.

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