arrow5 Comments
  1. anonomous
    May 18 - 11:51 pm

    Thank you for this revealing article Cort and if this is the case for muscles then my comments regarding nerve preservation, in the previous article, i.e. small nerves burning after being produced to warn of main nerve damage, rings even more true?

    Our nerves are there to protect us from hurting our bodies. Without warning signs e.g. blocking signals, we could do ourselves harm without realising.

    Thank you Dr Bateman and the Lights.

    • Cort Johnson
      May 19 - 11:32 am

      I believe it anonymous – It makes sense to me. :)

  2. John
    May 18 - 11:58 pm

    This article isn’t showing up on the homepage, don’t know if because it’s new or something possibly didn’t get updated.

    Also, check out the title of Dr. Light’s planned presentation at the upcoming 2014 OFFER Conference- “Using Gene Expression Technology to Objectively Subset and Diagnose FM, ME/CFS and Depression” -Alan Light, PhD, University of Utah

    Sounds like there should be some pretty interesting papers coming out soon (hopefully)! I wonder if the gene expression results lined up with the a-2a and non a-2a subsets reported in their previous work?

    • Cort Johnson
      May 19 - 11:31 am

      Hey – what a great conference.

      These ‘little’ blogs don’t show up on the Front Page – you can find them in a box on the right hand side of the page.

      Lucinda Bateman, MD Executive Director of OFFER and Fatigue Consultation Clinic Founder
      “Case Definitions of ME/CFS and FM”

      Bruce Campbell, PhD
      Executive Director of the CFIDS and Fibromylagia Self-help Program
      “Managing the Five Challenges of Chronic Fatigue Syndrome”

      Magdalena Lang, PhD, Massachusetts General Hospital
      ” Discover and Documentation of Small Fiber Neuropathy in FM Patients”

      Alan Light, PhD, University of Utah
      “Using Gene Expression Technology to Objectively Subset and Diagnose FM, ME/CFS and Depression”

      Elizabeth Unger, MD, PhD, Center for Disease Control and Prevention
      “Results of a Multi-site Clinical-study of ME/CFS”

  3. Kym
    Jun 27 - 5:24 pm

    It’s great to see the medical world take ME and fibromyalgia seriously.

    Recently, an immunologist dug a little deeper, first looking for patterns in my daughter’s past lab workups, then ordering some new labs. She was diagnosed with Common Variable Immune Deficiency (CVID). And, she will require infusions once a month for life. Previously, she was diagnosed with fibromyalgia, chronic mono (EBV) and lyme disease. She is 17. She has been sick for 10 years.

    Fortunately, her pediatrician gave me a referral to the same immunologist (after he reviewed my past lab tests)! CVID can be hereditary. I received the same diagnosis: except my immune system has twice the glitches of daughter’s immune system. I’m awaiting insurance approval to receive infusions, too.

    After years and years of seeking medical help, even with ME and Fibromyalgia diagnosis, having a disease that is recognized as “real” AND can be treated is incredibly validating.

    What a great relief it will be when ME/CFS and fibromyalgia patients get the same validation and treatment!

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