Author Archive for Cort Johnson

The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey Results

Unrefreshing Sleep  - Not Poor Sleep - Synonymous with ME/CFS and FM Poor sleep has been long  held to be synonymous with ME/CFS and FM, and indeed the survey found that fairly poor (40%) and really poor (27%) sleep was common. However, about a third of the survey participants stated their sleep Read more [...]

Should You Tell Your Doctor You Have Chronic Fatigue Syndrome or Fibromyalgia?

Do you tell a doctor the truth about your medical history? For most people the answer is a no-brainer: of course you tell them everything about your past. An ME/CFS diagnosis, in particular, though, can come with some baggage - baggage that suggests to some doctors that your problems aren't real Read more [...]

Is the Immune System Causing the Post-exertional Malaise in Fibromyalgia?

Exercise is a tricky topic in fibromyalgia. Scan the titles of studies touting the positive effects of exercise in FM and you might be excused for entertaining visions of FM patients happily bicycling, running, doing jump jacks, and pumping weights. That would be a mistake. Yes, exercise studies Read more [...]

Playing Catch With Your Thoughts – In Mid-Air: The Last Best Cure #VI

This is the sixth in a blog series as we follow Donna Jackson Nakazawa in "The Last Best Cure" as she incorporates mind/body practices into her life in order to experience more joy and better health after having  a severe autoimmune disorder.  Playing Catch with Thoughts in Mid-air “By putting Read more [...]

Make or Break Time For The ME/FM Action Network

The National ME/FM Action Network -  that's Action Network - is on the cusp of winning  $5,000 (and getting a chance to win $100,000)  in the Aviva Community Fund  Contest - or going home (sigh). Why should you  support the National ME/FM Action Network?  Because they act - and they act effectively. Without Read more [...]

Deconstructing Sleep in Fibromyalgia and Chronic Fatigue Syndrome – From Dr. Bateman

The question Dr. Bateman tackled in her recent Solve ME/CFS Initiative video was "Can Fibromyalgia and ME/CFS research help you sleep?" (Section in [ ] represent my additions.) Sleep, of course, is one of the biggies in ME/CFS and FM -- one of the four legs of the table Dr. Bateman focuses Read more [...]

Shake That *^#&! ing Stigma – The Shake the CFS Stigma Challenge Begins

Wouldn't you just love to "Shake the Stigma"? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it's a cover up for malingerers. That it's not "real". Wouldn't you just love for the National Read more [...]

The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey

Several ME/CFS and/or FM experts have said that you can't fix fibromyalgia or chronic fatigue syndrome without fixing sleep. Dr. Bateman, whose SolveME/CFS presentation on sleep we're going to cover soon, said she's tried literally everything she can think of  to help with sleep in FM and ME/CFS. Given Read more [...]