Author Archive for Cort Johnson

Mendus! Patient Initiated Treatment Trials Open New Possibilities

The aim of Mendus is to bring research within reach of those who need it.” Joshua Grant Hey, when the powers that be aren't helping out you innovate.  You find new ways to do things. You break new ground. You fill needs. Largely shut out of the medical mainstream the ME/CFS and FM communities Read more [...]

Shining A Light: The End ME/CFS Projects Severely Ill Patient Study

The severely ill…..They are the most baffling, disturbing and potentially illuminating subset of ME/CFS patients found. Baffling It’s hard to even read some of their stories. Their degree of debilitation can be mind-boggling. At their worst they can be totally bedbound, shuttered in darkness Read more [...]

Study Suggests Increased B-12 and Folate Could Help in ME/CFS

(If you came to this page from Facebook my apologies for the circuitous route to the blog. You have to click on one more link to get to the blog...Facebook blocked our link to the blog on the Forums) The Gottfries Clinic in Sweden is a bright spot in Scandanavia. With it's six doctors it Read more [...]

Finding Its Feet: the Open Medicine Institute Strides Forward

Vision was never the question with the Open Medicine Institute (OMI). They've always dreamed bigger than anyone else. They had vision in spades. The question was always follow through. Would they be able to make good on that big vision? Slowly but surely, they’re starting to, and they’re Read more [...]

Eye-Opening Finding: Small Fiber Neuropathy Found in Fibromyalgia Patients Eyes

 "These results reinforce the proposal of fibromyalgia as a neuropathic pain syndrome. Our results also show that fibromyalgia patients have multiple autonomic dysfunction symptoms." Authors The destruction of small nerve fibers in the skin of fibromyalgia patients (small fiber neuropathy - SFN) Read more [...]

No Smoking Guns? Triggering Events Not Common in Fibromyalgia?

How a disorder starts can be very informative. A rapid onset illness associated with swollen lymph glands, muscle aches, fatigue and fever so often marks the onset of a short-term infection that rarely do doctors attempt to identify the precipitating pathogen. Other beginnings are more obscure. The Read more [...]

A Missing Subset in ME/CFS and Fibromyalgia Revealed? Take the Disease Course Survey

Several studies suggesting that people with recent onset chronic fatigue syndrome (ME/CFS)  differ immunologically from longer duration patients may have uncovered a new subset. No studies that I know of, however, have examined a subset that's been evident at least anecdotally for quite some time: Read more [...]

Novel Immune Booster and Antiviral Agent Uncovered

Natural killer cells appear to be the ground zero for the immune dysfunction found in chronic fatigue syndrome.  These cells are, as their name implies, killers.  They're called "natural" killer cells because in contrast to cytotoxic T-cells which need to be activated to fight infections, NK Read more [...]