Is ME/CFS/FM bigger than we think? Does it consist of a complex of disorders such as ME/CFS/FM/POTS/Autonomic Neuropathy/IBS/ (fill in the blank) that share similar types of onset, symptoms and some lab results. Let's see how that question is shaking out.
Check out Pt I of the Read more [...]
The holidays are a special time of the year when family connections are renewed, but they can be stressful even for healthy people. In my experience, the holidays present two major stumbling blocks for people chronic fatigue syndrome and fibromyalgia.
The Intense Activity - balancing your desire Read more [...]
In the fifth web seminar produced by the ME/CFS Association in the Netherlands is by Dr. Visser, a Dutch cardiologist. He takes on Postural Orthostatic Tachycardia Syndrome (POTS).
POTS refers to an overly rapid increase in the heart rate that occurs upon standing. POTS, which was first described Read more [...]
Action Alert - Huge Insurance Broker Stops Paying for Autonomic Nervous System Tests
You probably have not undergone most forms of autonomic nervous system (ANS) testing at your doctors - yet, but there's a good chance it's in your
future. With the ANS problems showing up in study after Read more [...]
The 24th International Symposium on the Autonomic Nervous System was chock full of potential insights for people with chronic fatigue syndrome. We used Dysautonomia International's excellent overview of the relevant studies as a starting point. (Thanks to Issie for alerting me to the overview.)
Is Read more [...]
Intro: As I'm writing this it's already Sept and I'm on another road trip to see Dr. Peterson. Four months have gone by since the visit you are to read about below. In the interim it’s been a whirlwind – no, a tornado! - of medical activity since my last visit in May…
My treatment regimen Read more [...]
“CFS and ME is a serious disease or set of diseases for which there are currently no FDA approved therapies” 'Voice of the Patient' Document
The FDA's Patient Focused Drug Development Initiative marks the first time the FDA is implicitly
including patients narratives and needs into their Read more [...]
Multi-tasking, Chronic Fatigue Syndrome and Fibromyalgia
You might call multitasking the cognitive bane of the chronic fatigue syndrome patient’s world. With their reduced information processing slowing them down, and their lowered working memories not allowing them to retain as much, the last cognitive Read more [...]