Author Archive for Cort Johnson – Page 2

Diagnosing Chronic Fatigue Syndrome the IOM Way: the IOM Report #3

This is not a figment of their imagination. This is not somaticizing. This is a common, all too common, complex disease" Dr. Ellen Clayton, Committee Chair The proposed new name for chronic fatigue syndrome really jumped out in the IOM report but the report provides several other difference making Read more [...]

Changing the Conversation: the IOM Reports Sparks Re-evaluation of ME/CFS in the Media

I assert that for ME/CFS it's all about changing the conversations or narratives around it that are keeping it poorly funded and mostly ignored. Once those conversations change everything else will change. What was impossible beforehand will suddenly become not just possible but natural. In Read more [...]

IOM Swings For the Fences: Proposes New Name and Definition for Chronic Fatigue Syndrome

"It is clear from the evidence compiled by the committee that ME/CFS is a serious, chronic, complex, multisystem disease that frequently and dramatically limits the activities of affected patients." IOM Report The title of the report "Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining Read more [...]

Hard Choices: The Neurologist, the ME/CFS Expert and the Spinal Lesion: Corinne at Dr. Peterson #12

March, 2014 "Recognize your disabilities but emphasize your possibilities"~William Arthur Ward Allow me to apologize for my tardiness. I’m sorry to be posting a blog that happened almost a year ago! But with all the visits and tests that resulted after finding the spinal cord lesion in 2013, Read more [...]

Connections: the Pain and Distress Circuit in Fibromyalgia Identified

Fibromyalgia (FM), of course, is much more than about pain.  Called the “prototypical functional pain syndrome,” people with fibromyalgia often experience problems thinking (fibro-fog), sleep and autonomic nervous system problems, depression and catastrophizing.  The multidimensional aspects Read more [...]

Congressional Hearing To Remove Roadblocks to Ampligen Approval at FDA

In talking with experts and reviewing the drugs that have been approved over the past couple of years, we believe it is our right to ask Congress to hold a hearing to review the denial of Ampligen.  Below is a draft letter along with the email addresses where the letter should be sent.  It is clear Read more [...]

FDA Approval of MS Drug Puts Ampligen Back In Play

Deja Vu? "I just try and not think about it, because it gets me furious" multiple sclerosis patient The story sounds eerily similar. Citing questions regarding study quality and side effects, the FDA refuses to approve a drug for a condition for which few or no effective drugs exist. After hearing Read more [...]

Standing Clear: Drug Stops Orthostatic Intolerance in ME/CFS In Lab – Next Steps

Few healthy people give any thought at all to standing up, but for a subset of people with chronic fatigue syndrome standing up is an act that’s fraught with peril.  Whether their hearts start racing (postural orthostatic tachycardia syndrome (POTS) and/or their breathing does (postural hyperventilation) Read more [...]