The reverberations from the IOM Report continue. In their first official response to the 300 plus page IOM Report (Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness) the CDC stated it was archiving both its brochure on ME/CFS: "Recognition and Management of CFS: A Read more [...]
Less than two weeks ago Solve ME/CFS Initiative President Carol Head made an impassioned plea for $250 million in ME/CFS research funding. Yesterday, while stating this is an "exceptional time" for ME/CFS research, the SMCI announced that it's longtime Research Director, Suzanne Vernon is leaving Read more [...]
"If I had a hammer,
I'd hammer in the morning,
I'd hammer in the evening,
All over this land"
Pete Seeger and Lee Hays
People with chronic fatigue syndrome and fibromyalgia are by definition limited in how much they can do. Many are too limited to take on anything extra. Others have some energy Read more [...]
Fibromyalgia is considered the quintessential pain syndrome. The pain is unrelenting, difficult to treat and isn't caused by some obvious structural defect.
A Michigan research group following arthritis patients undergoing hip or knee replacement or remodeling has found you don’t need to Read more [...]
Jennie Spotila has stopped the publication of the Pathways to Prevention report on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (!)
Actually she's just paused it. During her sleuthing (which included filing a Freedom of Information Act) Jennie found that many of the public comments were Read more [...]
Dr. Drew Sturgeon, is a post-doctoral fellow and neuropsychologist at Stanford University conducting a study into resilience and chronic pain. Sturgeon would like to know why some people with high amounts of pain are able to stay productive while others cannot.
Stanford has one of the most Read more [...]
In the most comprehensive study of immune factors in the cerebral spinal fluid ever done in ME/CFS, Mady Hornig and Ian Lipkin reported finding dramatic differences in ME/CFS patients.
The results of the Simmaron Research Foundation /Chronic Fatigue Initiative study suggested that an extensive immune Read more [...]
Dr. Unger and Dr. Montoya are in the middle of some of the biggest studies ever produced in chronic fatigue syndrome. They talked about their respective programs on the PCOCA call about a month ago.
Here is what my scrambled notes indicated they said.
Dr. Elizabeth Unger
The Multi-Center ME/CFS Read more [...]