"ME/CFS research and the care of ME/CFS patients will not be advanced through this dangerous sinkhole of examining trauma or lumping our already overly broad category into the shapeless mass of “fibromyalgianess.” Jennie Spotila - "P2P Agenda: What the Huh?
The P2p workshop is coming up in early Read more [...]
Of all the disorders commonly allied with Chronic Fatigue Syndrome and Fibromyalgia, chemical sensitivity or Environmental Illness (EI) probably gets the least respect and certainly gets the least funding. It was astonishing to hear Dr. Clauw, an FM doctor and researcher who has battled disparaging Read more [...]
Researchers have quickly jumped on the small nerve fiber neuropathy (SFN) finding in Fibromyalgia. After starting out with smaller studies some bigger ones are starting to show up, and the outlines of SFN prevalence in FM are beginning to emerge.
This Greek study was not particularly big – Read more [...]
The Montoya Effect
Jose Montoya’s enthusiasm and sense of urgency is clearly catching on at Stanford. You don’t often see sentences like the one below in the first part of the latest Stanford study on ME/CFS:
“The high prevalence … in the United States, combined with profound disability Read more [...]
“If we lose sight of pleasures ... that intoxicate the senses in the most sensuous and beautiful and simplest of ways, then we've lost a lot." - Savannah Page
Researchers have used heat, electricity, chemicals, and pressure to evoke pain in FM patients and controls, and in every study people with Read more [...]
The Other Davis
The ME/CFS community got some tough news recently with the AHRQ report finding fault with most ME/CFS diagnostic and treatment trials. We had some good news, too, when we saw a top immune researcher at a top lab, Derya Unutmaz, applying cutting edge technology to ME/CFS patients. Now Read more [...]
Solve ME/CFS took its shot at the AHRQ report and it didn't pull any punches. The Solve ME/CFS review is notable because it was produced by an experienced researcher, Suzanne Vernon PhD, in collaboration with a Research Advisory Board that is made up of doctors, researchers, and industry leaders.
(In Read more [...]
Dr. Derya Unutmaz is one of those researchers we want in the ME/CFS field; he’s well-published, he’s an ace in immune system functioning, he has his own laboratory, and he’s doing cutting edge work. Suzanne Vernon described meeting in San Francisco with Esther Dyson, a technology Read more [...]