The CDC is having a public call-in session on Monday, Feb 23rd. First Dr. Unger will talk and then Dr. Jose Montoya of Stanford. (See the schedule below). Everybody is invited.
It's not a call to be missed.
Dr. Unger and the CDC
First Dr. Unger will talk on what the CDC has going on - and Read more [...]
Lenny Jason had little good to say about the new name in a recent article "How Disease Names Can Stigmatize". Prominently highlighting a slew of negative comments (" It is pathetic, degrading and demeaning", "Absolutely outrageous and intolerable!”) at the head of the article, Jason stated Read more [...]
The Pain Brain
Sometimes you've got to ask wonder where is it going to stop with fibromyalgia (FM) and the brain? Reductions in the volume of "gray matter" (the neuronal cell bodies and glial cells as opposed to the long nerve fibers) have been found in the insular, anterior cingulate cortices Read more [...]
This is not a figment of their imagination. This is not somaticizing. This is a common, all too common, complex disease" Dr. Ellen Clayton, Committee Chair
The proposed new name for chronic fatigue syndrome really jumped out in the IOM report but the report provides several other difference making Read more [...]
I assert that for ME/CFS it's all about changing the conversations or narratives around it that are keeping it poorly funded and mostly ignored. Once those conversations change everything else will change. What was impossible beforehand will suddenly become not just possible but natural.
In Read more [...]
"It is clear from the evidence compiled by the committee that ME/CFS is a serious, chronic, complex, multisystem disease that frequently and dramatically limits the activities of affected patients." IOM Report
The title of the report "Beyond Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome: Redefining Read more [...]
"Recognize your disabilities but emphasize your possibilities"~William Arthur Ward
Allow me to apologize for my tardiness. I’m sorry to be posting a blog that happened almost a year ago! But with all the visits and tests that resulted after finding the spinal cord lesion in 2013, Read more [...]
Fibromyalgia (FM), of course, is much more than about pain. Called the “prototypical functional pain syndrome,” people with fibromyalgia often experience problems thinking (fibro-fog), sleep and autonomic nervous system problems, depression and catastrophizing. The multidimensional aspects Read more [...]