Few healthy people give any thought at all to standing up, but for a subset of people with chronic fatigue syndrome standing up is an act that’s fraught with peril. Whether their hearts start racing (postural orthostatic tachycardia syndrome (POTS) and/or their breathing does (postural hyperventilation) Read more [...]
The Case for Centers of Excellence in ME/CFS
The Federal Advisory Committee for Chronic Fatigue Syndrome (CFSAC) is getting proactive. They’ve been making recommendations for years, but it’s only now that they’ve gotten organized and serious enough to make their case for what they want. Read more [...]
"Cellular Energy and its Impact on Health"
Dr. Klimas's annual patient conference on Saturday, Feb 7th is approaching fast. Titled "Cellular Energy and its Impact on Health" this half-day conference features some fascinating talks. Two from the Klimas team will sum up eight years of effort focused Read more [...]
“the present findings offer clinical implications that may serve to guide future studies of the pathophysiology and management of a variety of persistent pain conditions.” Loggia et. al.
Chronic pain was thought for many years to be mostly a neuronal problem. Over or underactive neurons in the Read more [...]
Into the Big Leagues
Low dose naltrexone (LDN) is able to do for some people with intractable pain what opioids and other drugs can't do - reduce the pain. Those drugs have something LDN doesn’t, however, – FDA approval.
You can’t prove that LDN works, however, until you can identify Read more [...]
Someone recently commented that because he didn't derive benefits from the Pridgen protocol that it must be snake oil. That would make sense if everyone with fibromyalgia was the same - and could be expected to respond similarly to a treatment but a recent New York Times article "Can a Treatment Read more [...]
A Different Approach
Younger’s been taking a very different approach to chronic fatigue syndrome and fibromyalgia than most researchers and he spoke about it in Pandora's first webinar of the year.
We know that people with ME/CFS and FM regularly leave their doctors appointments with disappointingly Read more [...]
“… No matter what our story, we’re all in the same boat, handling upriver, against the swift current of our thinking.” - Donna Jackson Nakazawa
In 2001 Donna Jackson Nakazawa - a journalist and mother - was paralyzed in a sudden onset of Guillain-Barré Syndrome, an autoimmune disease similar Read more [...]