“It’s an alp to climb, to see if we can combat this all with state of mind”
What do we know about Donna thus far? We know she was a very athletic mother and journalist before waking up one day paralyzed with a bout of Guillain-Barre syndrome. We know that she partially recovered, but that Read more [...]
It's not too much to say that if successful, the Pridgen antiviral trial for Fibromyalgia would be a paradigm changer.
Turning a difficult to treat 'central nervous system disorder' into a treatable (hopefully) herpesvirus infection disorder would be an amazing shift and it's not surprising that excitement Read more [...]
We just saw Esther, an ME/CFS patient make dramatic improvement not just in her gut but in her decades-long problems with extreme fatigue, cognition, orthostatic intolerance and mood by treating her small intestinal bacterial overgrowth (SIBO) with an antibiotic called Xifaxin. The gut problems Read more [...]
Esther’s Xifaxin Story
“It's impossible to describe the awe I (and my husband) feel as I am able to do things I haven't been able to do for so many years.”
Here we recount Esther's amazing experience with Xifaxin (Rifaxamin), an antibiotic often used to treat small intestinal bacterial Read more [...]
"Because it's time we became the strength of our numbers"
One thing that's missing in ME/CFS advocacy are easy and effective ways to do it. We lack the tools other advocacy groups use to communicate, get the word out quickly and easily, and produce change. It looks like Jen Brea of the Read more [...]
"Is it possible, then, that chronic fatigue syndrome represents an incomplete form of idiopathic intracranial hypertension (IIH)?" Higgins et al.
"Your lumbar pressure is high" I remember Dr. Baraniuk commenting as a doctor started removing my cerebral spinal fluid during a spinal tap for a study. Read more [...]
"In addition, to counter the spin, misinformation and misunderstanding that has held ME hostage, we also need a detailed, fully referenced narrative that tells the historical and political story of what has happened to ME" Mary Dimmock
Mary Dimmock is engaged in an epic work on ME/CFS and the first Read more [...]
P2P workshops are designed for topics that “are generally not controversial” - P2P website
Mary Dimmock and Jennie Spotila have collaborated on a call to request Director Francis Collins to cancel the P2P Workshop. Mary's background is in the pharmaceutical industry, Jennie was a lawyer. Throw Read more [...]