"Recognize your disabilities but emphasize your possibilities"~William Arthur Ward
Allow me to apologize for my tardiness. I’m sorry to be posting a blog that happened almost a year ago! But with all the visits and tests that resulted after finding the spinal cord lesion in 2013, Read more [...]
Fibromyalgia (FM), of course, is much more than about pain. Called the “prototypical functional pain syndrome,” people with fibromyalgia often experience problems thinking (fibro-fog), sleep and autonomic nervous system problems, depression and catastrophizing. The multidimensional aspects Read more [...]
In talking with experts and reviewing the drugs that have been approved over the past couple of years, we believe it is our right to ask Congress to hold a hearing to review the denial of Ampligen. Below is a draft letter along with the email addresses where the letter should be sent. It is clear Read more [...]
"I just try and not think about it, because it gets me furious" multiple sclerosis patient
The story sounds eerily similar. Citing questions regarding study quality and side effects, the FDA refuses to approve a drug for a condition for which few or no effective drugs exist. After hearing Read more [...]
Few healthy people give any thought at all to standing up, but for a subset of people with chronic fatigue syndrome standing up is an act that’s fraught with peril. Whether their hearts start racing (postural orthostatic tachycardia syndrome (POTS) and/or their breathing does (postural hyperventilation) Read more [...]
The Case for Centers of Excellence in ME/CFS
The Federal Advisory Committee for Chronic Fatigue Syndrome (CFSAC) is getting proactive. They’ve been making recommendations for years, but it’s only now that they’ve gotten organized and serious enough to make their case for what they want. Read more [...]
"Cellular Energy and its Impact on Health"
Dr. Klimas's annual patient conference on Saturday, Feb 7th is approaching fast. Titled "Cellular Energy and its Impact on Health" this half-day conference features some fascinating talks. Two from the Klimas team will sum up eight years of effort focused Read more [...]
“the present findings offer clinical implications that may serve to guide future studies of the pathophysiology and management of a variety of persistent pain conditions.” Loggia et. al.
Chronic pain was thought for many years to be mostly a neuronal problem. Over or underactive neurons in the Read more [...]