Author Archive for Cort Johnson – Page 5

Deconstructing Sleep in Fibromyalgia and Chronic Fatigue Syndrome – From Dr. Bateman

The question Dr. Bateman tackled in her recent Solve ME/CFS Initiative video was "Can Fibromyalgia and ME/CFS research help you sleep?" (Section in [ ] represent my additions.) Sleep, of course, is one of the biggies in ME/CFS and FM -- one of the four legs of the table Dr. Bateman focuses Read more [...]

Shake That *^#&! ing Stigma – The Shake the CFS Stigma Challenge Begins

Wouldn't you just love to "Shake the Stigma"? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it's a cover up for malingerers. That it's not "real". Wouldn't you just love for the National Read more [...]

The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey

Several ME/CFS and/or FM experts have said that you can't fix fibromyalgia or chronic fatigue syndrome without fixing sleep. Dr. Bateman, whose SolveME/CFS presentation on sleep we're going to cover soon, said she's tried literally everything she can think of  to help with sleep in FM and ME/CFS. Given Read more [...]

Channeling Pain: Fibromyalgia Mouse Study Points to Muscle Problems

“These results will be clinically useful, because we provide a new opportunity for mechanism-based treatment for chronic, widespread muscle pain resulting from recurrent acid insults possibly associated with symptoms of fibromyalgia and myofascial pain syndrome.” Chen et. al. The question Read more [...]

How Many Marbles Do YOU Have? A Children’s Chronic Fatigue Syndrome and Fibromyalgia Book

"Without having to say I was in pain, or I didn’t feel good or I was tired, I could simply say I was out of marbles." - Melinda Malott Chronic fatigue syndrome and fibromyalgia are difficult enough to understand for adults, but children are another story. Explaining why mom or dad can't do the things Read more [...]

Yes, Fibromyalgia is Real – and Here’s Why

When I saw that the video "Fibromyalgia: It's Real It's Manageable What You Can Do" had been viewed almost 85,000 times I had to check it out.  In it, Dr. Andrew Gross, the head of the Rheumatology Clinic at the University of California at San Francisco presents a a birds-eye view of fibromyalgia. The Read more [...]

The Dark Side of ME/CFS “Advocacy” Shows It’s Head

It can be rough advocating for ME/CFS but not just from the feds. They may ignore you or try to sidestep you, but at least they don't get personal. Some parts of our "community" aren't so considerate.  Jennie Spotila is used to being in the thicket of it, but what happened over the past week surprised Read more [...]

New York Times Article Emphazises Brain Findings in Chronic Fatigue Syndrome

David Tuller has dug deeper into chronic  fatigue syndrome than any other journalist. He's covered the CDC, the Pace trial, XMRV and others. When asked by Julie Rehmeyer what got him started he said this. I had a friend who was diagnosed with CFS about 20 years ago. I knew him before he developed Read more [...]