I used to call Anne “my favorite Swedish advocate”. In fact she was simply one of my favorite advocates. Smart, tough, flexible, courageous – Anne managed to communicate with advocates, patients, doctors and researchers around the world from the...
(Anne writes on how she copes with a very severe form of ME/CFS. Check out Anne’s story: From International Traveller to 43 sq. Meters here and her other blogs here. I added the images and captions – Cort) Insight and Practice …. A Lot of Practice...
(Anne’s is a difficult story but it’s a good story in a way because it demonstrates the full force of this illness. Anne’s story is reminiscent of Jenn Brea, Jamison Hill and Mary Dimmock’s son’s stories. Each was a young adult with not...
As things stand right now, one could say that it takes 20 years to get 1 year’s worth of ME/CFS research done. Why? Because the level of funding allocated for ME/CFS research is 20 times lower than that of comparable diseases. See “The Underfinanced ME/CFS Research,...
(Thanks to Anne for providing this eye-opening guest blog on the funding situation facing Chronic Fatigue Syndrome (ME/CFS). Anne has pledged to donate her share of any blog donations to ME/CFS research. Part II of Anne’s series on ME/CFS funding will appear...
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