If ‘malaise’ doesn’t adequately describe my dreadful condition after too much exertion, it does fit another consequence of ME/CFS. After so many years of trying to pace myself successfully (whatever that means, since my over-taxed level seems to change from week-to-week or even day-to-day), Read more [...]
So The Institute of Medicine has complicated and expanded the terminology wars with its recent report suggesting Systemic Exertion Intolerance Disease as a more accurate name. I don’t like it much more than I don’t like Chronic Fatigue Syndrome, but I recognize the value of the report’s major Read more [...]
I am surprised by my ambivalent response to the current media attention paid to Laura Hillenbrand.
I found her book “Unbroken” riveting; I don’t read much non-fiction, but I loved the way Hillenbrand adopted fiction-like techniques to tell this story. She incorporated such a wealth of Read more [...]
How Do I Know What’s Wrong, When I Always Have CFS?
The recent headaches started about two weeks before the stomach pain. My head seemed filled with cat litter. A woozy scratchy aching, either all over at once or in selected locations, on top, in back, in front. A bit of blurry vision.
One Read more [...]
I’ve been reading about the “Glutathione Depletion – Methylation Cycle Block Pathogenesis Hypothesis for CFS” since forever, it seems, and finally did the MTHFR test. Result: a homozygous mutation in the C677T gene (two copies of the C677T mutation) as well as a deficient status for glutathione. Read more [...]
It’s the Bones, Stupid
The endocrinologist and gynecologist both gasped at the results of my latest bone density scan. “If you don’t do something, you’ll wind up in a nursing home soon,” warned the endocrinologist.
They insist that I take either Prolia or Reclast, heavy duty medications Read more [...]
I suppose I’m depressed, but it’s not the slam-bang suck-out-my-soul torture of the early illness days when I choked inside my own Pigpen-like dust storm.
I have my distractions. I can laugh out loud at the satire of HBO’s “Last Week Tonight with John Oliver” and “Silicon Valley”. Read more [...]
"I do not hope for a cure or a radical positive change in my condition; instead I believe in the possibility of pleasurable moments." Carol Lefelt
I am overwhelmed by the large number of responses to my last piece about reaching the age of 70 and feeling that it might be time to stop my quest for Read more [...]