I felt particularly sick for a long time before our trek out west from New Jersey– woozy and aching and listless – and liable to crash miserably after almost anything, like unloading the dishwasher or washing and blow-drying my hair.
Maybe, as my husband hypothesized, anticipation of the Read more [...]
Christmas Week, 2013
Okay, so we all know the physical and emotional stresses for ME sufferers brought by the holidays. This year, I’m afraid, I added heaps more by agreeing to spend Christmas week in Hawaii at our time share with our children and now year-old grandson.
We have this timeshare Read more [...]
We humans define ourselves in terms of what we can DO. With CFS you have an existential crisis, cause you think, "If I can't DO, who or what AM I?"
I walk to the wooden cubbies in my school’s front office to pick up my mail. Usually my box is stuffed with notices, pamphlets, messages Read more [...]
Are You My Mother?
One of the first books we read to our sons was by P.D. Eastman called Are You My Mother? A mother bird, wearing her white polka-dotted red head scarf or babushka as a symbol of family life, leaves her unhatched egg alone in its nest while she flies away in search of food. Alas, Read more [...]
I am built like a skinny pear. Seems I inherited mixed up genes: my mother’s mother’s skinny upper torso and my father’s mother’s ample bottom. (Grandma Pauline’s maiden name was Gross. She was buxom, but I received only her thighs and thick calves and ankles—along with her Read more [...]
Dr. Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey
It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers
This Read more [...]
More Medical Maneuvers
Even after the not-so-successful chronic fatigue doctors, alternative doctors, and Lyme Literate doctors, and as other health issues arose, my Odyssey continued.
Dr. Beatrix Roemheld-Hamm, internist in a family practice associated with Robert Wood Johnson Hospital in New Read more [...]
Yell Fest – Unwelcome Distractions
With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]