As things stand right now, one could say that it takes 20 years to get 1 year’s worth of ME/CFS research done. Why? Because the level of funding allocated for ME/CFS research is 20 times lower than that of comparable diseases.
See “The Underfinanced ME/CFS Research, Pt I - Facts and figures Read more [...]
Dear Patient Community:
We are asking your help to continue to push for treatments for ME/CFS. Our ME/CFS Treatment team will continue to work for meetings between the FDA and pharmaceutical companies with the sole purpose of urging them to develop and approve drugs to treat ME/CFS. People Read more [...]
(Here we go again? Just months after Jennie Spotila uncovered the mess that was the IOM contract, she reports another ME/CFS project is going on behind closed doors. Once again the principals aren't talking. Ironically the government is starting to spend some money on chronic fatigue syndrome, Read more [...]
Canaries didn't warn coal miners that the air was bad by dying. It was when they stopped singing that miners knew the air was getting foul. Jen Brea may be sick. but she's singing loud and clear about chronic fatigue syndrome in her film project. In an empathetic video interview with Al Jazeera, Read more [...]
An Institute for All Americans?
This Budget request represents the Administration’s priorities for guiding the Department of Health and Human Services (HHS) to enhance the health and well-being of all Americans. National Institutes of Health
The Department of Health and Human Services 2013 Read more [...]
(Dr. Peterson speaks to the Swedish Parliament and years of effort in Holland culminate in the delivery of a petition to have ME/CFS be considered and treated as a biomedical disease in blogs by Anne Ortegren and Esme de Groot.)
Dr Peterson in Sweden
by Anne Ortegren
Dr Peterson and Gunnar Read more [...]
(As CFSAC kicks off its abbreviated session in webinar form, Ken Friedman looks back at ten years of CFSAC and asks what it has accomplished. Ken Friedman's own time on CFSAC in the early 2,000's was highlighted by his dissenting report "Fish Or War' which proposed and eventually set a new Read more [...]
(An earlier version of this blog appeared on Phoenix Rising)
'Let the Patient Revolution Begin'
A militant cry from those difficult ME/CFS patients unwilling to listen to doctors, researchers and government departments who only have patients' best interests at heart? No, this dramatic call comes Read more [...]