Over the next month, we’re going to try and ride the long-COVID wave once more – and bring home the goodies for both it and ME/CFS. Long COVID is a hot item right now. It’s in the news and multiple bills supporting it are up for consideration in the...
It’s wild times, indeed. Sometimes it seems like the earth is shifting beneath our feet. Other times it feels like it’s standing still. It’s good times for long COVID, though, as the future just got a bit brighter. As many people with long COVID...
There’s nothing like a crisis to expose fundamental weaknesses. As Warren Buffet likes to say, “It’s only when the tide goes out that you know who’s been swimming naked.” The coronavirus and long-COVID pandemic has exposed a lot of bare...
Advocacy Month Details Waiting on Broken Budget Our advocacy is expanding. We have more advocates every year. We’re reaching more people, recruiting more allies to our side every year – so it makes sense that Advocacy Week is no longer Advocacy Week but...
The NIH recently found a way to kick the chronic fatigue syndrome (ME/CFS) community in the teeth again. Jack Reacher couldn’t have done it any better. You have to give it to the NIH: they’re nothing if not masters of disappointment. Almost five years ago...
The big National Institutes of Health (NIH) effort on long COVID is rolling. It hasn’t come easily or quickly and the NIH has a lot of catching up to do. The world has known long COVID is a serious problem since last summer, but you wouldn’t have known it...