Archive for Advocacy – Page 5

Hunger Striker Decries FDA Denial of Only Medicine for Chronic Fatigue Syndrome

Ask Secretary Sebelius to start NIH Clinical Trial of Ampligen Contact: Robert Miller 703-554-5575, Courtney Miller 631-834-4681 In day 8 of his hunger strike, Chronic Fatigue Syndrome patient Robert Miller decried the FDA’s decision (announced hours ago) to disapprove Ampligen, Read more [...]

Chronic Fatigue Syndrome Hunger Strike Effort to Approve Ampligen Hitting the News

The plight of the chronic fatigue syndrome community was given a sympathetic and moving portrayal in a TV news story in Reno  yesterday that featured Bob Miller and Dr. Janet Smith, another Ampligen recipient.  The news organization contacted both the FDA and Hemispherx regarding the story. Read more [...]

ME/CFS Advocate Begins Hunger Strike For Ampligen Approval

Bob Miller has been to the Vice President's office, he's had one and one meetings with the Director of the NIH, he's canvassed politicians on the Hill - he's thrown everything he can into the fight to get this disorder recognition - but this time, the issue - the probable FDA rejection of Ampligen Read more [...]

FDA Advisory Committee Meeting on Ampligen and Chronic Fatigue Syndrome (ME/CFS) Pt: II: the VOTE and Aftermath

Check out Part I of this series ('FDA Advisory Committee Meeting on Ampligen Pt I: Dueling Presentation Set Stage for Critical Vote') on the Simmaron Foundations Website here  The Vote While the FDA statistical team was highly critical of the drug, the FDA put together a Committee  that Read more [...]

The Underfinanced ME/CFS Research Field Pt I: The Facts… Plus “What Can We Do? “

(Thanks to Anne for providing this eye-opening guest blog on the funding situation facing Chronic Fatigue Syndrome (ME/CFS). Anne has pledged to donate her share of any blog donations to ME/CFS research. Part II of Anne's series on ME/CFS funding will appear shortly) Find out more about Anne here Read more [...]

URGENT: ME/CFS Patient ‘A C T I O N’ for Patients, Family and Friends To Support Ampligen Approval at the FDA

Organizers: Robert Miller Patient/Advocate, Cort Johnson (Health Rising) , Billie Moore (Patient Advocate) and Team Contact: 511bobmiller42@gmail.com On December 20th, ME/CFS patients rose to the Challenge and Sent in 750 personal testimonies to the FDA Advisory Committee, requesting for Ampligen Read more [...]