The seventh busiest website on the internet, Amazon.com is truly Amazonian in its reach. You can buy almost anything on Amazon.com, and do so knowing that Amazon.com regularly sits atop the ratings for excellent customer service. It's a great place to shop, or if you're an Amazon.com Read more [...]
In July, eleven ME/CFS groups and thirty-one advocates requested the CDC use the two-exercise protocol in phase two of their multi-site study. Their letter stated:
The two-day CPET regimen known as the Stevens Protocol provides gas exchange and other objective and measurable Read more [...]
"It's exciting to partner with you to explore one of the most baffling medical mysteries of the 21st century, chronic fatigue syndrome"
The Stanford Chronic Infectious Illness Initiative led by Dr. Jose Montoya began in 2010. If they've been quiet lately, it’s not because they haven’t been Read more [...]
"a large, highly representative electronic data infrastructure for conducting clinical outcomes research. Specifically, this program will promote a more comprehensive, complete, longitudinal data infrastructure"
If there's anything the chronic fatigue syndrome community could use right now is Read more [...]
This blog came out of a trip last year to visit Dr. Kogelnik and learn about the Open Medicine Institute. Given the OMI's location in beautiful Palo Alto, a hub of innovation and technology, if there ever was one, we begin with a look at 'location'.
Location, Location, Location....Location Matters
Kogelnik Read more [...]
Bring Me Men to Match My Mountains
"Bring me men to match my mountains, Bring me men to match my plains, Men with empires in their purpose, And new eras in their brains" - Sam Walter Foss
A modern day equivalent for chronic fatigue syndrome might be "Give me data to match my disorder and researchers Read more [...]
WORKING WELL FOR ME/CFS
Our goal is to facilitate an understanding of the biological basis for fatigue and provide objectively determined therapeutic interventions that will improve quality of life for this population. Staci Stevens, Program Director for Workwell
The' Pacific Fatigue Lab' - Read more [...]
The Open Medicine Institute is fostering a new health care model by integrating direct patient involvement with a multi-disciplinary, big data technology approach to advance the understanding of complex diseases and directly improve outcomes. Linda Tannenbaum, Executive Director of the Open Medicine Read more [...]