Archive for Organizations – Page 3

Medicine for the 21st Century: The Open Medicine Institute Takes on Chronic Fatigue Syndrome (ME/CFS)

This blog came out of a trip last year to visit Dr. Kogelnik and learn about the Open Medicine Institute. Given the OMI's location in beautiful Palo Alto, a hub of innovation and technology, if there ever was one, we begin with a look at 'location'. Location, Location, Location....Location Matters Kogelnik Read more [...]

Big Disease – Meet Big Data: Open Medicine Institute Scores Grant to Tackle Chronic Fatigue Syndrome (ME/CFS)

Bring Me Men to Match My Mountains "Bring me men to match my mountains, Bring me men to match my plains, Men with empires in their purpose, And new eras in their brains" - Sam Walter Foss A modern day equivalent for chronic fatigue syndrome might be "Give me data to match my disorder and researchers Read more [...]

Working Well for ME/CFS (Still) – ‘Pacific Fatigue Lab’ (Workwell) Continues On After University Cuts Them Loose

WORKING  WELL FOR ME/CFS Our goal is to facilitate an understanding of the biological basis for fatigue and provide objectively determined therapeutic interventions that will improve quality of life for this population. Staci Stevens, Program Director for Workwell The' Pacific Fatigue Lab'  - Read more [...]

OMI Scores Major Grant To Explore Genetic Underpinnings and Alternative Therapies for Chronic Fatigue Syndrome (ME/CFS)

The Open Medicine Institute is fostering a new health care model by integrating direct patient involvement with a multi-disciplinary, big data technology approach to advance the understanding of complex diseases and directly improve outcomes. Linda Tannenbaum, Executive Director of the Open Medicine Read more [...]

They Have A Plan: OMI-Merit’s Push to Revolutionize Chronic Fatigue Research

Patients with ME/CFS desperately need answers. We are convinced these answers are readily available if we apply the best resources in a large-scale, concerted effort.  Linda Tannenbaum , Executive Director, Open Medicine Foundation ...He Has A Plan Dr Andreas Kogelnik, the leader behind OMI-MERIT Read more [...]

End of an Era: Kim McCleary Steps Down After 22 Years at the Helm of the CFIDS Association of America (CAA)

Talk about a jolt. Kim McCleary has been the face of the CFIDS Association of America (CAA) for over twenty years.  More than anyone else she's responsible for what the CFIDS Association of America is today, and today, after 22 years at the helm, she announced that she's leaving the CAA  on June Read more [...]

“Moving Steadily Forward”: Annette Whittemore and Dr. Lombardi on the WPI – Past and Future

Last year as I visited the Whittemore Peterson Institute I was struck, more than anything, by what an immense accomplishment it was.  Built in the pre-XMRV era when chronic fatigue syndrome (ME/CFS) hardly registered on the national scene,  the idea that a $15.5 million dollar facility mostly Read more [...]

Quick Hits from Dr. Klimas’ NSU Chronic Fatigue Syndrome Clinic Opening: Tweeting the Conference

Some quick hits from the daylong celebration of the opening of  Dr. Klimas  Institue for Neuro-Immune Medicine  at Nova Southeastern University. The full blog of the day will be posted on the Simmaron Rising page on the Simmaron Research Foundations website. Dean Opens the Celebration 26 Read more [...]