It was at about the six-month mark that I realized my case of mononucleosis from last year might be morphing into ME/CFS. It was a shocking thought.
I’d started lifting weights at 15. Annually, I spent more than 1,500 hours working out, and by the age of 22, I had devoted over 10,000 Read more [...]
I felt particularly sick for a long time before our trek out west from New Jersey– woozy and aching and listless – and liable to crash miserably after almost anything, like unloading the dishwasher or washing and blow-drying my hair.
Maybe, as my husband hypothesized, anticipation of the Read more [...]
My Shrinking Life - 19 years and Counting …. and Still Hopeful of a Reprieve! - Tasha's Story
This is a long and involved story of my journey with M.E. The reason behind it is to show the problems I’ve encountered dealing both with the illness itself and the medical profession which I Read more [...]
Christmas Week, 2013
Okay, so we all know the physical and emotional stresses for ME sufferers brought by the holidays. This year, I’m afraid, I added heaps more by agreeing to spend Christmas week in Hawaii at our time share with our children and now year-old grandson.
We have this timeshare Read more [...]
We humans define ourselves in terms of what we can DO. With CFS you have an existential crisis, cause you think, "If I can't DO, who or what AM I?"
I walk to the wooden cubbies in my school’s front office to pick up my mail. Usually my box is stuffed with notices, pamphlets, messages Read more [...]
Are You My Mother?
One of the first books we read to our sons was by P.D. Eastman called Are You My Mother? A mother bird, wearing her white polka-dotted red head scarf or babushka as a symbol of family life, leaves her unhatched egg alone in its nest while she flies away in search of food. Alas, Read more [...]
I am built like a skinny pear. Seems I inherited mixed up genes: my mother’s mother’s skinny upper torso and my father’s mother’s ample bottom. (Grandma Pauline’s maiden name was Gross. She was buxom, but I received only her thighs and thick calves and ankles—along with her Read more [...]
Of all people, I thought, not Tom Hennessy. Tom was such a fighter. It was true he had the most painful case of ME/CFS I ever encountered. A couple of years ago, ironically on his way to see a doctor, he'd fallen asleep and slammed into the back of an 18-wheeler, severely injuring himself. I don't Read more [...]