Dr. Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey
It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers
This Read more [...]
More Medical Maneuvers
Even after the not-so-successful chronic fatigue doctors, alternative doctors, and Lyme Literate doctors, and as other health issues arose, my Odyssey continued.
Dr. Beatrix Roemheld-Hamm, internist in a family practice associated with Robert Wood Johnson Hospital in New Read more [...]
"When you're sick the act of living is more act than living" Meghan O'Rourke
Meghan O'Rourke's piece in the Aug. 26th, 2013, issue of the New Yorker "What's Wrong with ME": "I had an autoimmune disease... then the disease had me" is about her struggles with an autoimmune disorder, not chronic fatigue Read more [...]
Yell Fest – Unwelcome Distractions
With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]
I have been lucky to locate compassionate, smart therapists who, unlike many of my medical doctors, are good listeners without complicating preconceptions that get in the way of real help. I’ve read that Cognitive Behavior Therapy is most successful with ME/CFS patients, but I’ve found that personality Read more [...]
This is a story about missed diagnosis after missed diagnosis, a persistent patient, and finally some answers that brought substantially improved health. It brings home a certain unsteadiness about diagnosing disorders like chronic fatigue syndrome and POTS (Postural Orthostatic Tachycardia Syndrome) Read more [...]
(Carol Lefelt continues her 'Chronic Fatigue Syndrome Chronicle series' with a look at her love/hate relationship with her wheelchair)
After a month completely homebound, I've bit the bullet and ordered my first wheelchair. On the one hand, I'm excited about it because I am sick of being cooped Read more [...]
"I can't tell you how demoralizing it is to be helpless when somebody you love is suffering. It's tremendously emasculating because the biggest problem you want to solve, you can't, so every day is an experience of failure."
Aaron Gell, quoting Laura Hillenbrand’s husband in “Chronic Read more [...]