Are You My Mother?
One of the first books we read to our sons was by P.D. Eastman called Are You My Mother? A mother bird, wearing her white polka-dotted red head scarf or babushka as a symbol of family life, leaves her unhatched egg alone in its nest while she flies away in search of food. Alas, Read more [...]
I am built like a skinny pear. Seems I inherited mixed up genes: my mother’s mother’s skinny upper torso and my father’s mother’s ample bottom. (Grandma Pauline’s maiden name was Gross. She was buxom, but I received only her thighs and thick calves and ankles—along with her Read more [...]
Of all people, I thought, not Tom Hennessy. Tom was such a fighter. It was true he had the most painful case of ME/CFS I ever encountered. A couple of years ago, ironically on his way to see a doctor, he'd fallen asleep and slammed into the back of an 18-wheeler, severely injuring himself. I don't Read more [...]
Dr. Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey
It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers
This Read more [...]
More Medical Maneuvers
Even after the not-so-successful chronic fatigue doctors, alternative doctors, and Lyme Literate doctors, and as other health issues arose, my Odyssey continued.
Dr. Beatrix Roemheld-Hamm, internist in a family practice associated with Robert Wood Johnson Hospital in New Read more [...]
"When you're sick the act of living is more act than living" Meghan O'Rourke
Meghan O'Rourke's piece in the Aug. 26th, 2013, issue of the New Yorker "What's Wrong with ME": "I had an autoimmune disease... then the disease had me" is about her struggles with an autoimmune disorder, not chronic fatigue Read more [...]
Yell Fest – Unwelcome Distractions
With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]
I have been lucky to locate compassionate, smart therapists who, unlike many of my medical doctors, are good listeners without complicating preconceptions that get in the way of real help. I’ve read that Cognitive Behavior Therapy is most successful with ME/CFS patients, but I’ve found that personality Read more [...]