Archive for Stories – Page 3

From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s Journey Through the Medical Profession

This is a story about missed diagnosis after missed diagnosis, a persistent patient, and finally some answers that brought substantially improved health. It brings home a certain unsteadiness about diagnosing disorders like chronic fatigue syndrome and POTS (Postural Orthostatic Tachycardia Syndrome) Read more [...]

My Wheelchair: ‘A Chronic Fatigue Syndrome Chronicle’ #10

(Carol Lefelt continues her 'Chronic Fatigue Syndrome Chronicle series' with a look at her love/hate relationship with her wheelchair) After a month completely homebound, I've bit the bullet and ordered my first wheelchair. On the one hand, I'm excited about it because I am sick of being cooped Read more [...]

Marriage: A ‘Chronic Fatigue Syndrome Chronicle’ #9

Steve  "I can't tell you how demoralizing it is to be helpless when somebody you love is suffering. It's tremendously emasculating because the biggest problem you want to solve, you can't, so every day is an experience of failure." Aaron Gell, quoting Laura Hillenbrand’s husband in “Chronic Read more [...]

‘Crashing!’… A Chronic Fatigue Syndrome Chronicle Continues – Pt. VII”

Crash: to break or go to pieces with or as if with violence and noise; to fall, land, or hit with destructive force; to decline suddenly and steeply Mirriam-Webster online dictionary From My Journal 2011 Here I am again, dispirited, in bed for almost two weeks and barely able to make dinner Read more [...]

Lyme Literacy: A ‘Chronic Fatigue Syndrome Chronicle’ Pt. VI

 Dr. Eugene Eskow, family practioner and my first Lyme doctor, Flemington, New Jersey Sometime in 2002, three years after the flu shot that did me in, I received a phone call from Carol Mekjian, a woman I had known before she moved from Highland Park with her husband, a physics professor, and two Read more [...]

Monkey Poop: The Alternative Medicine Practitioners – “A Chronic Fatigue Syndrome Chronicle”

The Odyssey: Thirteen Years and Counting I’m currently taking TransFactors, Probiotics, Amoxicillin, Valtrex and vitamins. I’m praying someone doesn’t post that eating monkey poop will cure me. Nventor (http://forums.phoenixrising.me/index.php?search/9111041/&q ) Dr. Michael Schacher Read more [...]

Seeing the Chronic Fatigue Syndrome Specialists: Part III of “A Chronic Fatigue Syndrome Chronicle”

(After trips to general practitioners, infectious disease specialists and psychiatrists don't produce results, Carol hits the ME/CFS specialist circuit. Check out more of Carol's "A Chronic Fatigue Syndrome Chronicle" here.) Part Three: The Odyssey, Chapter 3 Dr. Richard Podell Dr. Richard Podell, Read more [...]

Antidepressants, Talk Therapy and Reich: The Early Therapists – Pt. III of ‘A Chronic Fatigue Syndrome Chronicle’

(Part 3, The Odyssey, Chapter 2) Tom Johnson, a Therapist Friend of a Therapist Friend, Metuchen, NJ Another teeny dark office, filled with garage-sale stuffed furniture and noise machines for a hushed, secretive cloudiness. Tom was a nice-looking, sweet, smart man who used some techniques of cognitive Read more [...]