Archive for Treatment Blogs

“Could This Really Be Happening”? One Year With Dr. Chia – A Chronic Fatigue Syndrome Patient Reports

Could this REALLY be happening? One of the hallmarks of ME/CFS I have discovered over the last 20+ years living with this illness, as well as the year I have finally been under treatment by an expert is its sometimes amazing unpredictability.  After time, it seems almost impossible to be disappointed Read more [...]

The Continuing Travels of an Index Patient – Next Stop, San Francisco : Corinne and Dr. Peterson

Corinne’s visit to the University of California, San Francisco Neurology Center - June 2013 “What lies behind you and what lies before you pales insignificant when compared to what lies within you.”  ~Ralph Waldo Emerson {My treatment regimen had remained the same since my last blog dated Read more [...]

Think You’d Want to be an ‘Index Patient’? Think Again! Corinne at Dr. Peterson #10

Intro: As I'm writing this it's already Sept and I'm on another road trip to see Dr. Peterson. Four months have gone by since the visit you are  to read about below. In the interim it’s been a whirlwind – no, a tornado! - of medical activity since my last visit in May… My treatment regimen Read more [...]

‘We Press On’ – A Death in the Family, Diverticulitis and Immune Modulation : Seeing Dr. Chia #4

An Unexpected Death - Of the Worst Kind Since I last wrote about my experiences with Dr. Chia, I have been walking through a valley.  Walking…not collapsed –amazingly, given what’s happened. When I headed to Dr. Chia’s office the first week of August, I was in the midst of helping my parents Read more [...]

Keeping My Seat Belt Fastened: the Equilibriant Ride Continues – Me and Dr. Chia #3

(The roller-coaster ride continues as Christine meets up with a series of outside stressors that threaten to derail her progress as she heads back to Dr. Chia to figure out what to do next. Find more of Christine's blogs here.) May 2013 It has taken me 2 months to get to writing this post…My Read more [...]

Everything I Needed to Know About Managing My Health I Learned at Disneyland

The patient didn’t know it, but she was just 60 seconds away from relief. Standing at the doorway to Dr. Goldstein’s office with some PLO-gel glistening from her forearm, she looked disappointed. Marie had been without significant sleep for days, her fibromyalgia and M.E. pain flaring to the Read more [...]

Kelvin Lord Returns: “Having A Regular Day”

(In 2010 Kelvin Lord dragged himself into Dr. Lapp's office in a last-ditch effort to recover his failing health.  A year of Ampligen infusions  and 30 plus often hilarious and poignant blogs later he signed off with a blog in Jan, 2011, "Learning to Fly Again" , charting his gains. ' He Read more [...]

Me and Dr. Chia : A Chronic Fatigue Syndrome Patient Visits Dr. Chia

(Follow Christine, a long time chronic fatigue syndrome patient, as she searches for relief with infectious disease specialist, Dr. John Chia, who believe enteroviral infections are the heart of the problem for many patients.  Thanks to Christine for sharing her story. Interested in sharing yours? Read more [...]