Is ME/CFS/FM bigger than we think? Does it consist of a complex of disorders such as ME/CFS/FM/POTS/Autonomic Neuropathy/IBS/ (fill in the blank) that share similar types of onset, symptoms and some lab results. Let's see how that question is shaking out.
Check out Pt I of the Read more [...]
In the fifth web seminar produced by the ME/CFS Association in the Netherlands is by Dr. Visser, a Dutch cardiologist. He takes on Postural Orthostatic Tachycardia Syndrome (POTS).
POTS refers to an overly rapid increase in the heart rate that occurs upon standing. POTS, which was first described Read more [...]
The 24th International Symposium on the Autonomic Nervous System was chock full of potential insights for people with chronic fatigue syndrome. We used Dysautonomia International's excellent overview of the relevant studies as a starting point. (Thanks to Issie for alerting me to the overview.)
Is Read more [...]
"I don't want anyone to go though what I had to go through."
(Athletic and healthy, Lauren Stiles was suddenly felled by a mysterious illness in the middle of ski trip that left her unable to walk. It took years, but Lauren's doctors ultimately found that an autoimmune disease had attacked her Read more [...]
Dr. Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey
It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers
This Read more [...]
"There is a huge overlap between these different syndromes" Dr. Peter Rowe
If you watch this video you might want to skip over Dr. Henderson's remarks if you're a little sensitive, as I am, about ME/CFS's place in the research world.
Henderson started off by stating that Dr. Rowe was the first Read more [...]
This is a story about missed diagnosis after missed diagnosis, a persistent patient, and finally some answers that brought substantially improved health. It brings home a certain unsteadiness about diagnosing disorders like chronic fatigue syndrome and POTS (Postural Orthostatic Tachycardia Syndrome) Read more [...]