Archive for Community Reports

The Tests That Matter: A Chronic Fatigue Syndrome and Fibromyalgia Community Report

The goal of this Community Report is to compile of list of tests that matter. Not necessarily tests which have lead to a diagnosis but tests which have resulted in a treatment approach that has produced results - made you a bit (or a lot) healthier. If a test has revealed a diagnosis the doctor Read more [...]

The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey Results

Unrefreshing Sleep  - Not Poor Sleep - Synonymous with ME/CFS and FM Poor sleep has been long  held to be synonymous with ME/CFS and FM, and indeed the survey found that fairly poor (40%) and really poor (27%) sleep was common. However, about a third of the survey participants stated their sleep Read more [...]

Should You Tell Your Doctor You Have Chronic Fatigue Syndrome or Fibromyalgia?

Do you tell a doctor the truth about your medical history? For most people the answer is a no-brainer: of course you tell them everything about your past. An ME/CFS diagnosis, in particular, though, can come with some baggage - baggage that suggests to some doctors that your problems aren't real Read more [...]

The Chronic Fatigue Syndrome and Fibromyalgia Sleep Survey

Several ME/CFS and/or FM experts have said that you can't fix fibromyalgia or chronic fatigue syndrome without fixing sleep. Dr. Bateman, whose SolveME/CFS presentation on sleep we're going to cover soon, said she's tried literally everything she can think of  to help with sleep in FM and ME/CFS. Given Read more [...]

What Stops You From Trying To Get Better? An ME/CFS and Fibromyalgia Community Report

Everyone wants to get well, and if you asked anyone with chronic fatigue syndrome and/or fibromyalgia the one thing they wanted in their life, it would probably simply be  to be healthy again.  Most people would say they would do anything to be healthy again, and, in fact,  people often invest Read more [...]

What Stops You From Pacing?… An Inquiry Into Pacing in Chronic Fatigue Syndrome and Fibromyalgia

Thou Shalt Pace "Thou Shalt Pace" is kind of the first commandment for people with chronic fatigue syndrome and fibromyalgia. Nothing trumps pacing. If you pace you'll probably feel better, and if you don't you know you're going to feel worse. It's like gravity; you ignore it at your peril Read more [...]

What Enriches Your Life in the Midst of Chronic Fatigue Syndrome? What Helps You Make It Through?

In the third of the Community Reports Series we ask what "what in the midst of chronic fatigue syndrome enriches your life"? From walks with the dog, to working out in the gym, to eating half a tub of ice cream (or just a bowl for god's sake), taking trips to the movies, vacations,  nights Read more [...]

Given What You Now Know, What Would You Have Done Differently With Chronic Fatigue Syndrome (ME/CFS)?

The Community Reports We probably all have those head-slap moments when ask ourselves (later) "What was I thinking"? In the second blog in the Community Reports series we ask "If you knew what you know now, what would you have done differently in the course of your ME/CFS?". The Community Read more [...]