The New York Times is the most influential paper in the English speaking world. It gets hundreds of op ed applications a day, and it just chose to publish a powerful, powerful editorial on chronic fatigue syndrome.
Coming on the tails of the Institute of Medicine report Julie Rehmeyer, a journalist Read more [...]
About 4500 people saw the survey and about 550 took it. The survey consisted of a ranking mechanism that allowed the participants to rank their favorite names from first to last. The survey tool from Gravity Forms then produced an aggregate score.
Survey Round I
ME was the clear winner with Ramsey's Read more [...]
No Useful Purpose
Allodynia is a particularly nasty and mysterious problem. One of the first things to get about allodynia is that it serves no useful purpose. Other types of pain serve to protect an injured area but there’s nothing protective about a condition that causes results in the touch of Read more [...]
The CDC is having a public call-in session on Monday, Feb 23rd. First Dr. Unger will talk and then Dr. Jose Montoya of Stanford. (See the schedule below). Everybody is invited.
It's not a call to be missed.
Dr. Unger and the CDC
First Dr. Unger will talk on what the CDC has going on - and Read more [...]
Lenny Jason had little good to say about the new name in a recent article "How Disease Names Can Stigmatize". Prominently highlighting a slew of negative comments (" It is pathetic, degrading and demeaning", "Absolutely outrageous and intolerable!”) at the head of the article, Jason stated Read more [...]
The Pain Brain
Sometimes you've got to ask wonder where is it going to stop with fibromyalgia (FM) and the brain? Reductions in the volume of "gray matter" (the neuronal cell bodies and glial cells as opposed to the long nerve fibers) have been found in the insular, anterior cingulate cortices Read more [...]
This is not a figment of their imagination. This is not somaticizing. This is a common, all too common, complex disease" Dr. Ellen Clayton, Committee Chair
The proposed new name for chronic fatigue syndrome really jumped out in the IOM report but the report provides several other difference making Read more [...]
I assert that for ME/CFS it's all about changing the conversations or narratives around it that are keeping it poorly funded and mostly ignored. Once those conversations change everything else will change. What was impossible beforehand will suddenly become not just possible but natural.
In Read more [...]