Archive for ME/CFS FM Buzz

P2P Report on Chronic Fatigue Syndrome Delayed After Irregularities Found

Jennie Spotila has stopped the publication of the Pathways to Prevention report on Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (!) Actually she's just paused it. During her sleuthing (which included filing a Freedom of Information Act) Jennie found that many of the public comments were Read more [...]

Health Rising’s ME/CFS and FM Forum Plus Package is Open!

 Containing sections that allow you to review doctors, treatments, view recovery stories, identify resources, add and view video's, create bookmarks, browse a Prohealth store, pick your own theme (I'm running out of breath) - we can confidently say they're the most effective and complete Forum package Read more [...]

Advocates Mostly Laud Committee’s Response to P2P Report

Mary Dimmock noted that CFSAC, the federal advisory committee on ME/CFS, which is generally not especially noted for it's efficiency, nevertheless responded to the P2P draft report "unprecedented speed, focus and decisiveness" in its special session to respond to the P2P draft report. The committee Read more [...]

Long-time ME/CFS Researcher Wins Award

Just as we posted the results on Lenny Jason's potentially ground-breaking study  on creating a new definition, we learned  that he's just won a major award. Lenny Jason has played a important role in the growth and legitimization of  the ME/CFS field. It's hard  and more than a little depressing Read more [...]

Laura Hillenbrand is Not the ME/CFS Communities Bitch!

Got your attention? Jennie Spotila's recent blog "Laura Hillenbrand is Not Your Bitch" certainly got mine. Quite a few people  were upset  that chronic fatigue syndrome was not referred to in a recent TV interview. Some people want to Laura to advocate  for ME/CFS more.  Some people view Read more [...]

The Dark Side of ME/CFS “Advocacy” Shows It’s Head

It can be rough advocating for ME/CFS but not just from the feds. They may ignore you or try to sidestep you, but at least they don't get personal. Some parts of our "community" aren't so considerate.  Jennie Spotila is used to being in the thicket of it, but what happened over the past week surprised Read more [...]

New York Times Article Emphazises Brain Findings in Chronic Fatigue Syndrome

David Tuller has dug deeper into chronic  fatigue syndrome than any other journalist. He's covered the CDC, the Pace trial, XMRV and others. When asked by Julie Rehmeyer what got him started he said this. I had a friend who was diagnosed with CFS about 20 years ago. I knew him before he developed Read more [...]

Lipkin Project Gutting It Out

Ian Lipkin thinks the gut holds the key to Chronic Fatigue Syndrome (and who are we to disagree with him? ). His study will identify microbes that are associated with immune activation in ME/CFS, then find ways to knock them down using probiotics, antibiotics followed by probiotics, restriction Read more [...]