Stanford did it right. They produced video's of the March 2014 Stanford Symposium on ME/CFS and now they're giving us access to them - for free. Some of the most exciting findings in years came out in the Symposium.
Dr. Unger's excellent introduction to epidemiology in Read more [...]
What do you do if you have a disease which has few clinical trials but lots of patients needing help, and 30 or so practitioners with decades of experience under their belts?
Instead of waiting for a clinical trial to get underway (or not) you 'tap their intuition'; i.e. you Read more [...]
The renowned Stanford geneticist, Ron Davis Phd, who's son Whitney has a very serious case of ME/CFS has opened a research foundation at Stanford to find answers to ME/CFS. He's als0, on the foundations Facebook page, supplying answers to one question a week from the ME/CFS community.
He's Read more [...]
In a presentation to an NIH conference on translating research results into clinical practices, the scientific director of the Simmaron Research Foundation, Dr. Isabel Barao, will present a paper suggesting something very strange may be going on in ME/CFS patients' immune systems.
Her Read more [...]
Invest in ME's annual conference always has interesting speakers and Dr. Rosamund Vallings was there, as always to write up an overview.
Check out Dr. Julia Newton on how autonomic nervous system problems may be the source of fatigue in many disorders, Dr. James Baraniuk on what happens to the Read more [...]
We just saw Esther, an ME/CFS patient make dramatic improvement not just in her gut but in her decades-long problems with extreme fatigue, cognition, orthostatic intolerance and mood by treating her small intestinal bacterial overgrowth (SIBO) with an antibiotic called Xifaxin. The gut problems Read more [...]
"Because it's time we became the strength of our numbers"
One thing that's missing in ME/CFS advocacy are easy and effective ways to do it. We lack the tools other advocacy groups use to communicate, get the word out quickly and easily, and produce change. It looks like Jen Brea of the Read more [...]
"In addition, to counter the spin, misinformation and misunderstanding that has held ME hostage, we also need a detailed, fully referenced narrative that tells the historical and political story of what has happened to ME" Mary Dimmock
Mary Dimmock is engaged in an epic work on ME/CFS and the first Read more [...]