Archive for ME/CFS FM Buzz

Advocates Mostly Laud Committee’s Response to P2P Report

Mary Dimmock noted that CFSAC, the federal advisory committee on ME/CFS, which is generally not especially noted for it's efficiency, nevertheless responded to the P2P draft report "unprecedented speed, focus and decisiveness" in its special session to respond to the P2P draft report. The committee Read more [...]

Long-time ME/CFS Researcher Wins Award

Just as we posted the results on Lenny Jason's potentially ground-breaking study  on creating a new definition, we learned  that he's just won a major award. Lenny Jason has played a important role in the growth and legitimization of  the ME/CFS field. It's hard  and more than a little depressing Read more [...]

Laura Hillenbrand is Not the ME/CFS Communities Bitch!

Got your attention? Jennie Spotila's recent blog "Laura Hillenbrand is Not Your Bitch" certainly got mine. Quite a few people  were upset  that chronic fatigue syndrome was not referred to in a recent TV interview. Some people want to Laura to advocate  for ME/CFS more.  Some people view Read more [...]

The Dark Side of ME/CFS “Advocacy” Shows It’s Head

It can be rough advocating for ME/CFS but not just from the feds. They may ignore you or try to sidestep you, but at least they don't get personal. Some parts of our "community" aren't so considerate.  Jennie Spotila is used to being in the thicket of it, but what happened over the past week surprised Read more [...]

New York Times Article Emphazises Brain Findings in Chronic Fatigue Syndrome

David Tuller has dug deeper into chronic  fatigue syndrome than any other journalist. He's covered the CDC, the Pace trial, XMRV and others. When asked by Julie Rehmeyer what got him started he said this. I had a friend who was diagnosed with CFS about 20 years ago. I knew him before he developed Read more [...]

Lipkin Project Gutting It Out

Ian Lipkin thinks the gut holds the key to Chronic Fatigue Syndrome (and who are we to disagree with him? ). His study will identify microbes that are associated with immune activation in ME/CFS, then find ways to knock them down using probiotics, antibiotics followed by probiotics, restriction Read more [...]

The Old School Resurfaces as P2P Workshop Takes Psychosocial Turn

"ME/CFS research and the care of ME/CFS patients will not be advanced through this dangerous sinkhole of examining trauma or lumping our already overly broad category into the shapeless mass of “fibromyalgianess.” Jennie Spotila - "P2P Agenda: What the Huh? The P2p workshop is coming up in early Read more [...]

Burmeister Lawsuit Forces Feds To Produce IOM Documents

Jeanette Burmeister's attempt to force the Department of  Health  and Human Services (DHHS) to provide a wide range of documents pertaining to the IOM contract prevailed in court. Represented by her former law firm of Baker & McKenzie LLP, Burmeister argued that the documents provided by the Read more [...]