Archive for Organizations

Shining A Light: The End ME/CFS Projects Severely Ill Patient Study

The severely ill…..They are the most baffling, disturbing and potentially illuminating subset of ME/CFS patients found. Baffling It’s hard to even read some of their stories. Their degree of debilitation can be mind-boggling. At their worst they can be totally bedbound, shuttered in darkness Read more [...]

Finding Its Feet: the Open Medicine Institute and Foundation Strides Forward

Vision was never the question with the Open Medicine Institute (OMI). They've always dreamed bigger than anyone else. They had vision in spades. The question was always follow through. Would they be able to make good on that big vision? Slowly but surely, they’re starting to, and they’re Read more [...]

IOM Report Knocks Out the CDC Toolkit For Chronic Fatigue Syndrome

The reverberations from the IOM Report continue. In their first official response to the 300 plus page IOM Report (Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness) the CDC stated it was archiving both its brochure on ME/CFS: "Recognition and Management of CFS: A Read more [...]

Unleashing Suzanne Vernon? Vernon Steps Down As SMCI Research Director

Less than two weeks ago Solve ME/CFS Initiative President Carol Head made an impassioned plea for $250 million in ME/CFS research funding.  Yesterday, while stating this is an "exceptional time" for ME/CFS research, the SMCI announced that it's longtime Research Director, Suzanne Vernon is leaving Read more [...]

“If You Had a Hammer” – What Would You Do? A Health Rising Inquiry

"If I had a hammer, I'd hammer in the morning, I'd hammer in the evening, All over this land" Pete Seeger and Lee Hays People with chronic fatigue syndrome and fibromyalgia are by definition limited in how much they can do. Many are too limited to take on anything extra. Others have some energy Read more [...]

The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums Are Here!

It's finally happened. The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums are open for business. We (Stavya and I) actually started working on them well over a year ago. Why did it take so long? We scoured the market for ways to improve the Forums and settled on some add on's that Read more [...]

Dr. Montoya Talks – With the CDC – On ME/CFS

The CDC is having a public call-in session on Monday, Feb 23rd. First Dr. Unger will talk and then Dr. Jose Montoya of Stanford.  (See the schedule below). Everybody is invited. It's not a call to be missed. Dr. Unger and the CDC First Dr. Unger will talk on what the CDC has going on - and Read more [...]

Health Rising Looks Back and Forward : Our Yearly Update

Traffic 2014 was a very good year for Health Rising.  We put out well over two hundred blogs.  Web traffic went up about 70% and we're averaging over 4,000 page views a day. Over 5,000 people now subscribe to the blog. Without people reading and participating on the blogs this website Read more [...]