Archive for Organizations

IOM Report Knocks Out the CDC Toolkit For Chronic Fatigue Syndrome

The reverberations from the IOM Report continue. In their first official response to the 300 plus page IOM Report (Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness) the CDC stated it was archiving both its brochure on ME/CFS: "Recognition and Management of CFS: A Read more [...]

Unleashing Suzanne Vernon? Vernon Steps Down As SMCI Research Director

Less than two weeks ago Solve ME/CFS Initiative President Carol Head made an impassioned plea for $250 million in ME/CFS research funding.  Yesterday, while stating this is an "exceptional time" for ME/CFS research, the SMCI announced that it's longtime Research Director, Suzanne Vernon is leaving Read more [...]

“If You Had a Hammer” – What Would You Do? A Health Rising Inquiry

"If I had a hammer, I'd hammer in the morning, I'd hammer in the evening, All over this land" Pete Seeger and Lee Hays People with chronic fatigue syndrome and fibromyalgia are by definition limited in how much they can do. Many are too limited to take on anything extra. Others have some energy Read more [...]

The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums Are Here!

It's finally happened. The Health Rising ME/CFS, Fibromyalgia and Chronic Pain Forums are open for business. We (Stavya and I) actually started working on them well over a year ago. Why did it take so long? We scoured the market for ways to improve the Forums and settled on some add on's that Read more [...]

Dr. Montoya Talks – With the CDC – On ME/CFS

The CDC is having a public call-in session on Monday, Feb 23rd. First Dr. Unger will talk and then Dr. Jose Montoya of Stanford.  (See the schedule below). Everybody is invited. It's not a call to be missed. Dr. Unger and the CDC First Dr. Unger will talk on what the CDC has going on - and Read more [...]

Health Rising Looks Back and Forward : Our Yearly Update

Traffic 2014 was a very good year for Health Rising.  We put out well over two hundred blogs.  Web traffic went up about 70% and we're averaging over 4,000 page views a day. Over 5,000 people now subscribe to the blog. Without people reading and participating on the blogs this website Read more [...]

Chronic Fatigue Syndrome Researcher Turns Pilot Study into Major Grant

Patrick McGowan's  epigenetic research started out as a small 24 person pilot project funded by the SolveCFS Initiative but it's not small any more. With the help of a $500,000 grant from the Dr. Ralph and Marian Falk Medical Research Trust, Patrick McGowan (and Dr. Lucinda Bateman) are now embarking Read more [...]

They Built It and They Are Coming: Effort Attracts New Researchers To ME/CFS Field

“Our intention is to evolve the SolveME/CFS BioBank™ into the most sought after resource for ME/CFS research in existence” In 2008, seeking to shift their focus to research, the then CFIDS Association of America (CAA) (now The SolveME/CFS Initiative) hired their first Research Director, Read more [...]