Archive for Organizations – Page 2

Chronic Fatigue Syndrome and Fibromyalgia Practitioner Review Program Requests Beta Testers

Finding a good practitioner is hard - and so is avoiding a bad one. We're mostly running blind as we go from one practitioner to the other, hoping that one of them is going to know something about chronic fatigue syndrome and/or fibromyalgia. We want to cut out the guesswork, save you precious Read more [...]

The ‘Double Your Money’ Health Rising Matching Challenge

Thanks to everyone who's helped Health Rising to receive $175 in new recurring donations monthly over the past 3 days and to those who've provided valuable  single donation support. Matching Donation Opportunity Five dollars a month just got a bit bigger. In a first for Health Rising, one Read more [...]

The Five Dollar a Month Challenge For Health Rising

Lots of organizations from National Public Radio to the Canary in a Coal Mine film are asking for support these days, but we're  different - because we're asking for so little. We're enjoyed our five-dollar a month November challenge to keep Health Rising going and growing so much that we're Read more [...]

Producing Results: The Simmaron Research Foundation’s Special Chronic Fatigue Syndrome Project

SIMMARONS NATIONAL INSTITUTES of HEALTH PROJECT Hundreds of precious samples from chronic fatigue syndrome (ME/CFS)  patients sit frozen in the NIH's sample repository.  Gathered by ME/CFS experts during the  big XMRV study, many are from long-term, highly debilitated patients.  They are the Read more [...]

The Communicator: An Interview with Former NIH Chronic Fatigue Syndrome Program Chief Dennis Mangan

Dennis Mangan was like a whirlwind at the NIH in the two years he was in charge of the ME/CFS program at the Office of Research For Women's Health (ORWH). First he created a listerv to better communicate with the patients, then he changed the website, then he changed the name to ME/CFS, then, Read more [...]

Win-Win: Shop on AND Support Health Rising (Get Your Own Personal Store…) The seventh busiest website on the internet, is truly Amazonian in its reach. You can buy almost anything on, and do so knowing that regularly sits atop the ratings for excellent customer service. It's a great place to shop, or  if you're an Read more [...]

Advocates Rebuffed: CDC Whiffs On Opportunity to Prove Reduced Exercise Capacity Present in Major Chronic Fatigue Syndrome Study

  Advocates Rebuffed In July, eleven ME/CFS groups and thirty-one advocates requested the CDC use the two-exercise protocol in phase two of their multi-site study. Their letter stated: The two-day CPET regimen known as the Stevens Protocol provides gas exchange and other objective and measurable Read more [...]

Chronic Fatigue Syndrome Making Inroads at Top Medical School: Montoya’s ME/CFS Initiative at Stanford Grows

"It's exciting to partner with you to explore one of the most baffling medical mysteries of the 21st century, chronic fatigue syndrome" The Stanford Chronic Infectious Illness Initiative led by Dr. Jose Montoya began in 2010. If they've been quiet lately, it’s not because they haven’t been Read more [...]