Archive for Simmaron

Shake That *^#&! ing Stigma – The Shake the CFS Stigma Challenge Begins

Wouldn't you just love to "Shake the Stigma"? You know the stigma that says chronic fatigue syndrome is just about fatigue (and mild fatigue at that). That everyone has it from time to time. That it's a cover up for malingerers. That it's not "real". Wouldn't you just love for the National Read more [...]

Simmaron Research Foundation Study Targets Heart of the Immune Breakdown in ME/CFS

So many different pathogens can trigger ME/CFS that immune system problems (not the bugs themselves) are probably the key factor in this disorder. That fact and increasing evidence of high rates of heritability convinced the Simmaron Research Foundation to launch an effort to get at the underpinnings Read more [...]

Producing Results: The Simmaron Research Foundation’s Special Chronic Fatigue Syndrome Project

SIMMARONS NATIONAL INSTITUTES of HEALTH PROJECT Hundreds of precious samples from chronic fatigue syndrome (ME/CFS)  patients sit frozen in the NIH's sample repository.  Gathered by ME/CFS experts during the  big XMRV study, many are from long-term, highly debilitated patients.  They are the Read more [...]

The Communicator: An Interview with Former NIH Chronic Fatigue Syndrome Program Chief Dennis Mangan

Dennis Mangan was like a whirlwind at the NIH in the two years he was in charge of the ME/CFS program at the Office of Research For Women's Health (ORWH). First he created a listerv to better communicate with the patients, then he changed the website, then he changed the name to ME/CFS, then, Read more [...]