Archive for Research

How Walking to Bathroom Can Be Harder Than Running a Marathon: A Doctor’s ME/CFS Case Study

Talking about taking research into your own hands. Mark Vink is a physician in the Netherlands who suddenly fell ill with chronic fatigue syndrome (ME/CFS). He wasn't just your typical physician; he also happened to have a brown belt in judo, was the former captain of a Dutch national field hockey Read more [...]

Spinning Fibromyalgia: Brain Findings Suggest Dopamine May Be Key

Everyone comes to a disease with their own preconceptions. That fact never seemed more true than in this Canadian fibromyalgia brain study.  The researchers asked a good question and got a good answer and then made an interesting interpretation. Although the interpretation may leave something Read more [...]

Post Ebolavirus Disease Syndrome (PEVDS) – the new Chronic Fatigue Syndrome / Fibromyalgia? The Post-Infectious Syndromes Pt I

The Post Infectious Syndromes Pt I They came down with infection and never got over it. They're experiencing fatigue, dizziness, abdominal pain, muscle and joint aches, headaches, sleep problems, weight loss and vision problems.  They're not ME/CFS or fibromyalgia patients - they're Ebolavirus survivors Read more [...]

Ian Lipkin Gets ME/CFS Grant – and So Do Others: the NIH Grants of 2015

Ian Lipkin gets a big grant. And so did some others. (Could the IOM and P2P reports have prompted this little flurry of interest?) Check out all the active NIH chronic fatigue syndrome grants I could find.  ME/CFS needs many, many more grants, but anyone looking at these grants will be struck, Read more [...]

The Czarista Has Landed: Vernon and Bateman to Form ME/CFS and FM Center

I am so excited and honored to partner with the Bateman Horne Center to establish a world-class research program that will bring science-based medicine to ME/CFS patients. Suzanne Vernon The Czarista has landed.  As promised Suzanne Vernon is back in the ME/CFS research field. She'll be working with Read more [...]

The CDC’s Chronic Fatigue Syndrome Research Program: Boon Or Bust? – A Review

(This is a lengthy blog. Now might be the time, if you haven't used them yet, to use the print or PDF buttons at the bottom of the blog) Recently a Senate Subcommittee zeroed out the entire budget of the CDC's CFS program for next year in an Appropriations bill. It's not clear why they did so, but Read more [...]

Chronic Fatigue Syndrome Found Worse Than Diabetes, Multiple Sclerosis, Cancer, etc.

Let's put aside questions of whether a disease is going to kill you or not and concentrate on what happens if it doesn't kill you. Let's say God said you had to have a chronic illness but he/she would allow you to choose which one to have. On what basis would you make that choice? My guess is that Read more [...]

Excluding Factors: Jason Critiques the IOM Definition for ME/CFS

Clearly, issues concerning reliability of clinical diagnosis are complex and have important research and practical implications. Jason et. al In the beginning of his overview on the IOM definition and name change Jason notes the numerous false starts and botched definitions that have plagued chronic Read more [...]