Archive for Stories – Page 2

My Job: A Chronic Fatigue Syndrome Chronicle #15

We humans define ourselves in terms of what we can DO. With CFS you have an existential crisis, cause you think, "If I can't DO, who or what AM I?" Chris B I walk to the wooden cubbies in my school’s front office to pick up my mail. Usually my box is stuffed with notices, pamphlets, messages Read more [...]

Nuturing: Family and Friends – “A Chronic Fatigue Syndrome Chronicle” # 14

Are You My Mother? One of the first books we read to our sons was by P.D. Eastman called Are You My Mother?  A mother bird, wearing her white polka-dotted red head scarf or babushka as a symbol of family life, leaves her unhatched egg alone in its nest while she flies away in search of food. Alas, Read more [...]

Me and My Body (My Body!) – Reflections on Free Will and Pudding Thighs….

My Body  I am built like a skinny pear. Seems I inherited mixed up genes: my mother’s mother’s skinny upper torso and my father’s mother’s ample bottom. (Grandma Pauline’s maiden name was Gross. She was buxom, but I received only her thighs and thick calves and ankles—along with her Read more [...]

‘My Brother By Choice’ – A Good-bye to Tom Hennessy – Fierce Advocate: Memorial Tomorrow

Of all people, I thought, not Tom Hennessy. Tom was such a fighter. It was true he had the most painful case of ME/CFS I ever encountered. A couple of years ago, ironically on his way to see a doctor, he'd fallen asleep and slammed into the back of an 18-wheeler, severely injuring himself. I don't Read more [...]

Tilting South: Seeing Dr. Klimas in Miami – ‘A Chronic Fatigue Syndrome Chronicle’ # 13

Dr.  Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers This Read more [...]

No Stone Unturned: A Chronic Fatigue Syndrome Chronicle #12

More Medical Maneuvers Even after the not-so-successful chronic fatigue doctors, alternative doctors, and Lyme Literate doctors, and as other health issues arose, my Odyssey continued.  Dr. Beatrix Roemheld-Hamm, internist in a family practice associated with Robert Wood Johnson Hospital in New Read more [...]

What’s Wrong With ME? Autoimmunity, Chronic Fatigue Syndrome and Diet: One Person’s Story

"When you're sick the act of living is more act than living" Meghan O'Rourke Meghan O'Rourke's piece in the Aug. 26th, 2013, issue of the New Yorker "What's Wrong with ME": "I had an autoimmune disease... then the disease had me" is about her struggles with an autoimmune disorder, not chronic fatigue Read more [...]

Gaining Traction (Through Distraction): A Chronic Fatigue Syndrome Chronicle #12

< Yell Fest – Unwelcome Distractions  With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]
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