Archive for Stories – Page 3

What’s Wrong With ME? Autoimmunity, Chronic Fatigue Syndrome and Diet: One Person’s Story

"When you're sick the act of living is more act than living" Meghan O'Rourke Meghan O'Rourke's piece in the Aug. 26th, 2013, issue of the New Yorker "What's Wrong with ME": "I had an autoimmune disease... then the disease had me" is about her struggles with an autoimmune disorder, not chronic fatigue Read more [...]

Gaining Traction (Through Distraction): A Chronic Fatigue Syndrome Chronicle #12

< Yell Fest – Unwelcome Distractions  With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]

Two Therapists: ‘A Chronic Fatigue Syndrome Chronicle” #11

I have been lucky to locate compassionate, smart therapists who, unlike many of my medical doctors, are good listeners without complicating preconceptions that get in the way of real help. I’ve read that Cognitive Behavior Therapy is most successful with ME/CFS patients, but I’ve found that personality Read more [...]

From Chronic Fatigue Syndrome to Fibromyalgia To POTS To Success: One Woman’s Journey Through the Medical Profession

This is a story about missed diagnosis after missed diagnosis, a persistent patient, and finally some answers that brought substantially improved health. It brings home a certain unsteadiness about diagnosing disorders like chronic fatigue syndrome and POTS (Postural Orthostatic Tachycardia Syndrome) Read more [...]

My Wheelchair: ‘A Chronic Fatigue Syndrome Chronicle’ #10

(Carol Lefelt continues her 'Chronic Fatigue Syndrome Chronicle series' with a look at her love/hate relationship with her wheelchair) After a month completely homebound, I've bit the bullet and ordered my first wheelchair. On the one hand, I'm excited about it because I am sick of being cooped Read more [...]

Marriage: A ‘Chronic Fatigue Syndrome Chronicle’ #9

Steve  "I can't tell you how demoralizing it is to be helpless when somebody you love is suffering. It's tremendously emasculating because the biggest problem you want to solve, you can't, so every day is an experience of failure." Aaron Gell, quoting Laura Hillenbrand’s husband in “Chronic Read more [...]

‘Crashing!’… A Chronic Fatigue Syndrome Chronicle Continues – Pt. VII”

Crash: to break or go to pieces with or as if with violence and noise; to fall, land, or hit with destructive force; to decline suddenly and steeply Mirriam-Webster online dictionary From My Journal 2011 Here I am again, dispirited, in bed for almost two weeks and barely able to make dinner Read more [...]

Lyme Literacy: A ‘Chronic Fatigue Syndrome Chronicle’ Pt. VI

 Dr. Eugene Eskow, family practioner and my first Lyme doctor, Flemington, New Jersey Sometime in 2002, three years after the flu shot that did me in, I received a phone call from Carol Mekjian, a woman I had known before she moved from Highland Park with her husband, a physics professor, and two Read more [...]