"When you're sick the act of living is more act than living" Meghan O'Rourke
Meghan O'Rourke's piece in the Aug. 26th, 2013, issue of the New Yorker "What's Wrong with ME": "I had an autoimmune disease... then the disease had me" is about her struggles with an autoimmune disorder, not chronic fatigue Read more [...]
Yell Fest – Unwelcome Distractions
With no proof whatsoever, I believe that many of us with debilitating chronic diseases are so focused on these diseases that other medical problems seem like annoying distractions. Get lost; I can’t be bothered with you. Healthy people have a troublesome Read more [...]
I have been lucky to locate compassionate, smart therapists who, unlike many of my medical doctors, are good listeners without complicating preconceptions that get in the way of real help. I’ve read that Cognitive Behavior Therapy is most successful with ME/CFS patients, but I’ve found that personality Read more [...]
This is a story about missed diagnosis after missed diagnosis, a persistent patient, and finally some answers that brought substantially improved health. It brings home a certain unsteadiness about diagnosing disorders like chronic fatigue syndrome and POTS (Postural Orthostatic Tachycardia Syndrome) Read more [...]
(Carol Lefelt continues her 'Chronic Fatigue Syndrome Chronicle series' with a look at her love/hate relationship with her wheelchair)
After a month completely homebound, I've bit the bullet and ordered my first wheelchair. On the one hand, I'm excited about it because I am sick of being cooped Read more [...]
"I can't tell you how demoralizing it is to be helpless when somebody you love is suffering. It's tremendously emasculating because the biggest problem you want to solve, you can't, so every day is an experience of failure."
Aaron Gell, quoting Laura Hillenbrand’s husband in “Chronic Read more [...]
Crash: to break or go to pieces with or as if with violence and noise; to fall, land, or hit with destructive force; to decline suddenly and steeply
Mirriam-Webster online dictionary
From My Journal
Here I am again, dispirited, in bed for almost two weeks and barely able to make dinner Read more [...]
Dr. Eugene Eskow, family practioner and my first Lyme doctor, Flemington, New Jersey
Sometime in 2002, three years after the flu shot that did me in, I received a phone call from Carol Mekjian, a woman I had known before she moved from Highland Park with her husband, a physics professor, and two Read more [...]
The information found on Health Rising is mostly put together by people with ME/CFS and/or FM.
It is not intended as medical advice and should be used for informational purposes only.