Archive for Mind/body

“A Sweet Retreat”: Meditating While Having Chronic Fatigue Syndrome – A Meditator Returns

I learned to meditate in 2007 and developed CFS in 2011. In the three years in between, I participated in some 20 retreats of 2 to 14 days in length. Yes, meditation is addictive (in the best way possible). Yet since I became sick, I've mostly discarded meditation as just one more activity that requires Read more [...]

 Telomeres, Wandering Minds, and Creating Cellular Health: the Last Best Cure V

(A continuing  series of blogs on "The Last Best Cure"; one woman's attempt to find joy and improve her  health while battling  an autoimmune disorder.) “The good news is that we are not our thoughts.” - Clifford Saron, PhD, Center for Mind and Brain, UC Davis People with Chronic Fatigue Read more [...]

The Cortisol, PEM and Stress Management Link in Chronic Fatigue Syndrome

Stress management skills, cortisol awakening response, and post-exertional malaise in Chronic Fatigue Syndrome Daniel L. Hall a,∗, Emily G. Lattie a, Michael H. Antonia, Mary Ann Fletcherb, Sara Czajac, Dolores Perdomoc, Nancy G. Klimasb. Psychoneuroendocrinology (2014) 49, 26—31  “Given Read more [...]

Challenging Loss in Chronic Illness: An Chronic Fatigue Syndrome Patient Finds Grace in Small Things

(As we've seen in past blogs and as we'll see with Donna in the Last Best Cure blog series, mindfulness practices - such as the gratitude practices Sue writes about below, if engaged in regularly - can bring benefits both to the quality of life and sometimes even the health of people with chronic Read more [...]

The Past WAS Prologue: The Last Best Cure II: An Autoimmune Patient Searches For Health

(This is  Pt. II in a series of blogs that explore Donna Jackson Nakazawa's story of her search for health and wellness in "The  Last Best Cure". Check  out Pt. I here.) “What you really need to translate for people for whom Western medicine has done all it can - is this: all the science is Read more [...]

The ‘Best Exercise’ For Chronic Fatigue Syndrome and Fibromyalgia: Laurie Hope on Qigong

Qigong is the best exercise I have found for Chronic Fatigue Syndrome and Fibromyalgia. Laurie Hope What is Qi? (also chi, ch’i, ki) Chances are if you’re on this website you have some problem with qi. Qi is the Chinese name for the life force or vital energy that flows around and through Read more [...]

Like Chinese Water Torture: A Pain Researcher Falls Prey to Catastrophizing (and Lives to Tell About It )

"An intriguing and clinically relevant question is whether training individuals to alter their cognitive and affective response to nociceptive input might mitigate or reverse central sensitization." For good reasons 'catastrophizing' is something of a dirty word in the ME/CFS community. Some Read more [...]

The Big Lightning Process Trial Begins – What Do You Think?

The Lightning Process understandably raises hackles in the ME/CFS community.  Phil Parker is viewed as a charlatan by some and an impediment to the hard science needed to understand this disorder by others.  The LP's  notoriety, it's rapid spread to many countries, and the fact that some people Read more [...]