Archive for CCC

Strong Core of ME/CFS Experts Bodes Well for IOM Clinical Definition of Chronic Fatigue Syndrome

IOM in Control Once the statement of task and budget are finalized, the committee works independently to come to consensus on the questions raised. Up to now the DHHS has been in charge.  Now it was the IOM's turn in spotlight. Once the statement of task and budget are finalized, the committee Read more [...]

Feds Snub Chronic Fatigue Syndrome Community…Again: Cut Experts Out, Fund Outside Group to Redefine Chronic Fatigue Syndrome

The Feds announced they've  reversed their decision to stop the contract with the IOM to produce a definition for doctors and are continuing forward..........End of conversation. The ME/CFS experts have been cut out; career  bureaucrats are making the decisions now. This is weird and unsettling Read more [...]

Deliverance or Disaster? The Canadian Consensus Definition Petition Conundrum (Take the Poll)

When 26 patient organizations and advocates sign a letter urging the government to do something it's time to sit up and take note.  Alot of good, smart and effective people support the move to press the federal government to use the Canadian Consensus Criteria (CCC)  in all their programs. The Read more [...]

Are the Canadian Consensus and International Consensus Criteria Broken? Study Suggests Both May Select for More Psychiatric Patients

The Canadian Consensus and International Consensus Criteria are much beloved by the chronic fatigue syndrome community and it's easy to see why; after decades of dealing with a vague definition, people with ME/CFS could finally see themselves in a definition for the first time. Created from within Read more [...]
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