A talk on definitions might not seem to be the occasion for one of the more passionate and exciting presentations of the conference, but it was. Lenny Jason is convinced that getting the definition right is absolutely critical for the future of Chronic Fatigue Syndrome, and he's passionate about Read more [...]
The thirty-five is now fifty...
Instead of being mollified by the DHHS working document, the effort by ME/CFS experts to rescind the IOM contract to produce a clinical case definition has actually gathered steam. The fifty ME/CFS experts signing the letter now include Dr. Lily Chu, Dr. Kenneth Read more [...]
The Feds announced they've reversed their decision to stop the contract with the IOM to produce a definition for doctors and are continuing forward..........End of conversation.
The ME/CFS experts have been cut out; career bureaucrats are making the decisions now. This is weird and unsettling Read more [...]
(Are different ME/CFS doctors seeing different types of ME/CFS patients. Would closely examining those patients reveal the elusive subsets researcher have been talking about for decades? At the FDA Workshop on April 26, Dr Elizabeth Unger, head of the CDC's Chronic Fatigue Syndrome programme Read more [...]