Archive for HHS

Hearing Requested for Denial of Treatment For ME/CFS

 Take Action       Patients Needed:               PART 1: Instructions to Take Action  To All ME/CFS –S.E.I.D. Patients, Family and Friends, As most patients know the IOM and NIH P2P have released some positive findings in our disease. While there Read more [...]

Feds Snub Chronic Fatigue Syndrome Community…Again: Cut Experts Out, Fund Outside Group to Redefine Chronic Fatigue Syndrome

The Feds announced they've  reversed their decision to stop the contract with the IOM to produce a definition for doctors and are continuing forward..........End of conversation. The ME/CFS experts have been cut out; career  bureaucrats are making the decisions now. This is weird and unsettling Read more [...]