PART 1: Instructions to Take Action
To All ME/CFS –S.E.I.D. Patients, Family and Friends,
As most patients know the IOM and NIH P2P have released some positive findings in our disease. While there Read more [...]
Ian Lipkin thinks the gut holds the key to Chronic Fatigue Syndrome (and who are we to disagree with him? ).
His study will identify microbes that are associated with immune activation in ME/CFS, then find ways to knock them down using probiotics, antibiotics followed by probiotics, restriction Read more [...]
Stanford did it right. They produced video's of the March 2014 Stanford Symposium on ME/CFS and now they're giving us access to them - for free. Some of the most exciting findings in years came out in the Symposium.
Dr. Unger's excellent introduction to epidemiology in Read more [...]
Mindy Kitei just posted a long interview with Ian Lipkin, the renowned 'virus-hunter' leading the Chronic Fatigue Initiative's ME/CFS pathogen discovery project. Dr. Lipkin has also begun a crowdfunding effort to raise the funds to do comprehensive microbiome analyses in people with Chronic Fatigue Read more [...]
The assays Dr. Lipkin used in the CFI ME/CFS pathogen study would not detect the kind of 'persistent, subacute' infections some researchers and doctors believe are present in chronic fatigue syndrome
Fine needle biopsies of the thyroid gland in ME/CFS could uncover evidence Read more [...]
SIMMARONS NATIONAL INSTITUTES of HEALTH PROJECT
Hundreds of precious samples from chronic fatigue syndrome (ME/CFS) patients sit frozen in the NIH's sample repository. Gathered by ME/CFS experts during the big XMRV study, many are from long-term, highly debilitated patients. They are the Read more [...]
Dr. Ian Lipkin surprised everyone on the CDC's Conference call yesterday when he presented many of the results from the two major pathogen studies involving the Chronic Fatigue Syndrome Initiative and Dr. Montoya at Stanford.
These studies, easily the most rigorous of their type ever attempted Read more [...]