Archive for NIH

Eyes on the Prize: NIH Spending On ME/CFS in 2014

(Thanks to our ace advocate Jennie Spotila for allowing Health Rising to post her blog on NIH spending. With it's 30 billion plus budget the NIH is easily the biggest single medical research funder in the world.   The good news is that from the Younger biomarker to the Patrick exercise to the Katz Read more [...]

Former NIH Official Says Chronic Fatigue Syndrome Program Must Move In Order to Succeed

Dennis Mangan was the chair of the Trans-NIH Working Group for ME/CFS, a little-known but critical element of the chronic fatigue syndrome program at the National Institutes of Health (NIH).  In this long interview done last year I asked him, a former insider, why it's so been so difficult to get Read more [...]

NIH Spending on Chronic Fatigue Syndrome ….Increases in 2013

(Thanks to Jennie Spotila for her advocacy work and  letting Health Rising reprint her blog  on NIH funding.  Jennie presents some good news - an actual increase in funding at the NIH in 2013 - and for good grants by good investigators. It wasn't a huge increase and we're not nearly where we Read more [...]

Secretary of Health Sebelius Responds to Senate Majority Leader Harry Reid on Chronic Fatigue Syndrome (ME/CFS)

We thank Senate Majority Leader Harry Reid for his longtime work and support for the ME/CFS community, and especially for his recent efforts with the Secretary of Health to stress the serious unmet need in the ME/CFS community and the drastic implications of the FDA's denial of the only medicine in Read more [...]

The Underfinanced ME/CFS Research Field Pt I: The Facts… Plus “What Can We Do? “

(Thanks to Anne for providing this eye-opening guest blog on the funding situation facing Chronic Fatigue Syndrome (ME/CFS). Anne has pledged to donate her share of any blog donations to ME/CFS research. Part II of Anne's series on ME/CFS funding will appear shortly) Find out more about Anne here Read more [...]