Archive for POTS

Immersed: How I Found a Way (After Decades of Trying) to Help My Allodynia and Nerve Pain

I suspect many you are like me: there is something dramatically wrong with your body and it has been that way for quite a while.  You surf the ups and downs of your symptoms and occasionally wonder, "What does this symptomatic change mean?" If you are like me, you have learned that most medical Read more [...]

Problems Standing? Studies Suggest Autoimmunity Causes Orthostatic Intolerance: Implications For Chronic Fatigue Syndrome

"In conclusion, these data support the addition of POTS to a growing number of cardiovascular entities with an autoimmune pathophysiology." Authors The Rituximab findings, the female predominance, the increasing evidence of heritability, the inflammatory component, and the common infectious trigger Read more [...]

Insights From the 24th Autonomic Nervous System Symposium #2: Complexes, Critters, Drugs and the Gut

  The Complex Is ME/CFS/FM bigger than we think?  Does it consist of a complex of  disorders such as ME/CFS/FM/POTS/Autonomic Neuropathy/IBS/ (fill in the blank) that share similar types of onset, symptoms and some lab results. Let's see how that question is shaking out. Check out Pt I of the Read more [...]

High Heart Rates and Low Blood Flows: the Visser Video Series on Chronic Fatigue Syndrome Continues

In the fifth web seminar produced by the ME/CFS Association in the Netherlands is by Dr. Visser, a Dutch cardiologist. He takes on Postural Orthostatic Tachycardia Syndrome (POTS). POTS refers to an overly rapid increase in the heart rate that occurs upon standing.  POTS, which was first described Read more [...]

Insights From the 24th Autonomic Nervous System Symposium #1: Autoimmunity / CO2 / Bad Reflexes and Your Next Diagnosis

The 24th International Symposium on the Autonomic Nervous System was chock full of potential insights for people with chronic fatigue syndrome.  We used Dysautonomia International's excellent overview of the relevant studies as a starting point.  (Thanks to Issie for alerting me to the overview.) Is Read more [...]

Dysautonomia 101 From Lauren Stiles For Chronic Fatigue Syndrome and Fibromyalgia

 "I don't want anyone to go though what I had to go through." (Athletic and healthy, Lauren Stiles was suddenly felled by a mysterious illness in the middle of ski trip that left her unable to walk. It took years, but Lauren's doctors ultimately found that an autoimmune disease had attacked her Read more [...]

Tilting South: Seeing Dr. Klimas in Miami – ‘A Chronic Fatigue Syndrome Chronicle’ # 13

Dr.  Nancy Klimas, Chief Medical Officer of the Chronic Fatigue Center for Research and Treatment for Neuro-Immune Disorders, Miami, Florida, and her associate Dr. Irma Rey It was a pleasure to meet with people who believe in the disease, know its details, and understand the ordeals of its sufferers This Read more [...]

Dr. Rowe on the Hunt: A Search for Chronic Fatigue Syndrome (ME/CFS)

"There is a huge overlap between these different syndromes" Dr. Peter Rowe If you watch this video you might want to skip over Dr. Henderson's remarks if you're a little sensitive, as I am, about ME/CFS's place in the research world. Henderson started off by stating that Dr. Rowe was the first Read more [...]