Unraveled #4: Drs. Ruhoy and Kaufman on Sleep in ME/CFS, FM, long COVID and Allied Diseases
Sleep Series This is the 2nd in a series of (at least) 4 blogs on sleep. Health Rising's Sleep Series Pt. I – Dr. Bruck Interview - Bronc kicked the series off with an interview of Dr. Bruck - a retired sleep researcher whose son has ME/CFS. Pt. II – Ruhoy and...
Bad Motor? Are ME/CFS, Fibromyalgia and Long COVID all Motor Cortex Diseases?
Avindra Nath’s big ME/CFS NIH study recently found increased motor cortex excitability and issues with effort preference and “reward” in ME/CFS. Reward is kind of a weird but important term in neuroscience. The “reward system” is...
The Vampire: Is the Immune System Sucking the Energy Out of People with ME/CFS? – the NIH ME/CFS Conference Pt. I
Joesph Breen from the National Institutes of Allergy and Infectious Diseases (NIAID) - which sponsored the conference - started the if off by referring to the last NIH ME/CFS conference - in 2019 - which was intended to accelerate...
Dan Neuffer on Recovery From ME/CFS and FM Pt. 4: “Stop Trying So Hard to Recover!”
"Stop Trying So Hard to Recover!" Dan Neuffer Dan Neuffer has been investigating ME/CFS and FM recovery stories longer than anyone. In our 3-part series of interviews so far, Dan has said that he's now seen so many recovery stories that he's stopped counting them,...
Roadmaps/Conferences/Advocacy Week/Webinars/Seminars Oh My…
Things are happening...so many things are happening (or have happened). In an effort to keep up with them - and not to miss some very timely events - I'm going to try and pack as many as I can find into one resource blog. Time-Sensitive Events Solve M.E.'s Advocacy...
Sleep Issues in People with ME – A Conversation with Professor Dorothy Bruck
Health Rising's Sleep Series Pt. I – Dr. Bruck Interview - Bronc kicked the series off with an interview of Dr. Bruck - a retired sleep researcher whose son has ME/CFS. Pt. II – Ruhoy and Kaufman on Sleep - an overview of a fascinating talk by two long-term ME/CFS/FM...
The Nath Intramural ME/CFS Study Pt. II: Missed Opportunities, Misreadings and… Success (?)
The second part of a 3-part series of blogs on the “Deep phenotyping of post-infectious myalgic encephalomyelitis/chronic fatigue syndrome” study looks at who was in the study and how they were selected, how severely the study was truncated by the pandemic (quite...
The Nath ME/CFS Intramural Study Pt. I: “It’s a Brain Disease…”
"One takeaway is It's a disease that comes from the brain" Nancy Klimas It was one of the most expensive ME/CFS studies ever done. The brainchild of former NIH Director Francis Collins, the unusual study was designed to give the NIH solid footing to move forward in a...
The NIH ME/CFS Roadmap Metabolism Webinar – Duration Matters, Exhausted T-Cells, Abnormal Lipids and Muscles
The Metabolism webinar is part of the ME/CFS Research Roadmap effort. The effort was put together by Dr. Koroshetz and Vicky Whittemore as a way to advance chronic fatigue syndrome (ME/CFS) research at the NIH. The Roadmap effort was conceived pre-COVID, then was...