(Are different ME/CFS doctors seeing different types of ME/CFS patients. Would closely examining those patients reveal the elusive subsets researcher have been talking about for decades? At the FDA Workshop on April 26, Dr Elizabeth Unger, head of the CDC's Chronic Fatigue Syndrome programme Read more [...]
Bob Miller can't dance...he can't run...he can't even play baseball for ME/CFS - he's not strong enough for that but he can fall, and May 12th, ME/CFS International Day, he's going to fall a long way, very quickly, to raise money for ME/CFS research.
It's been a busy couple of months for Bob. Read more [...]
WORKING WELL FOR ME/CFS
Our goal is to facilitate an understanding of the biological basis for fatigue and provide objectively determined therapeutic interventions that will improve quality of life for this population. Staci Stevens, Program Director for Workwell
The' Pacific Fatigue Lab' - Read more [...]
The Open Medicine Institute is fostering a new health care model by integrating direct patient involvement with a multi-disciplinary, big data technology approach to advance the understanding of complex diseases and directly improve outcomes. Linda Tannenbaum, Executive Director of the Open Medicine Read more [...]
Patients with ME/CFS desperately need answers. We are convinced these answers are readily available if we apply the best resources in a large-scale, concerted effort. Linda Tannenbaum , Executive Director, Open Medicine Foundation
...He Has A Plan
Dr Andreas Kogelnik, the leader behind OMI-MERIT Read more [...]
Tomorrow in a webinar the CFIDS Association of America will provide the results of Shukla's study looking at the effects of exercise on gut flora and gut permeability in chronic fatigue syndrome (ME/CFS).
We know the gut is affected in ME/CFS; we just don't know how much and what role it Read more [...]
"What we need in CFS is what I call the development of an innovation supply chain."
Bernard Munos started off Day II of the FDA Stakeholders Meeting on Chronic fatigue syndrome (ME/CFS). Bernard Munos is not an FDA guy - he's an independent analyst - really a gadfly of sorts - with a long Read more [...]
The Canadian Consensus and International Consensus Criteria are much beloved by the chronic fatigue syndrome community and it's easy to see why; after decades of dealing with a vague definition, people with ME/CFS could finally see themselves in a definition for the first time. Created from within Read more [...]