arrow19 Comments
  1. Valerie Free
    Feb 24 - 11:00 am

    Hello Cort and Christine,
    This is a very interesting blog. I am considering going to Dr. Chia and was wondering if, Christine, you would like to speak with me about it. I can call relatively inexpensively by phone. Do you have a way we could contact each other? Cort could share my email with you if it was okay with you guys.
    Thanks for the blog.
    All the best.
    Val

    • Christine McLaughlin
      Feb 24 - 8:19 pm

      Thank you for your comment, Val.

      I have sent you an email : )

      Christine

  2. Cort Johnson
    Feb 24 - 12:40 pm

    I’ll let her know Valerie…I find Dr. Chia really interesting. I didn’t realize until recently that he had been seeing ME/CFS patients since the early 1990′s after his partner at the time wrote an article on EBV and CFS…An infectious disease specialist he’s been examining patients for viruses and pathogens almost as long as Dr. Peterson and Dr. Klimas yet he’s come to some different conclusions. (Dr. Klimas does use Equilbriant at times). He also seems to have pretty good success rates..About a quarter of his patients he can’t do anything with, if I remember correctly but he has success, from large to moderate, on the others. It’s really fascinating. :)

  3. Kristina
    Feb 24 - 7:53 pm

    Great read, thanks Christine and Cort!

    I loved the three-part Dr. Chia interview that was recently featured on ME/CFS Alert as well.

    I have never had some of these pathogen tests and find his work hopeful. I wish he wasn’t on the other side of the country or I would be there in a heartbeat. I am floored that he accepts insurance and that he charged you the same as a 15-min GP visit! Speechless…..

  4. Christine McLaughlin
    Feb 24 - 8:28 pm

    Thank you, Kristina!

    Did you know there is a 4th and final video of Dr. Chia’s interview on MECFS Alert?

    Perhaps you could contact Dr.Chia’s office to see of they know physicians in your area who follow his protocol. Also, it may be possible for you to have blood tests done near you, by his orders, then have him interpret them. I do know he sees patients from all over the world. How he works with long-distant patients, I don’t know, but it might be worth looking into.

    There has to be a way for you if this path can help you!

    Thanks again for your kind comments!

    Christine

  5. Zac
    Feb 27 - 2:49 am

    Christine, thank you for the nice write-up of your experiences with enteroviral treatment. It looks like you didn’t need a stomach biopsy to start treatment?
    I see he also says patients with autoimmune and seizure manifestations should not use equilibrant.

    I wish you continued progress all the way to being cured.

    Zac

  6. Christine McLaughlin
    Feb 27 - 3:05 am

    Thank you, Zac!

    I had blood tests that showed enterovirus. Dr. Chia said a biopsy wouldn’t effect my treatment plan. He seems to be very careful about not doing things that won’t be of great help.

    I plan to ask the autoimmunity question when I see him in May, since I had read that he said Equilibrant shouldn’t be taken by those who have autoimmune disease. He asked me in my second appointment if I had ever been diagnosed with Rheumatoid Arthritis since my rheumatoid factor was high. I haven’t. I’ll be writing a follow-up regarding my 2nd visit soon.

    Thanks again for reading, and wishing me progress. I hope you find the treatment that will give you the most help. This trial-and-error business gets so wearying! I’m determined to give this one at least the 2 years Dr. C said it would take, as long as he thinks I’m progressing…even though it feels the opposite at times.

    Blessings,
    Christine

    • Zac
      Mar 05 - 8:28 am

      Very interesting, Christine. Even with the high rheumatoid factor, he let you proceed with the treatment. I suppose he deemed it a beneficial risk to proceed because you had positive enterovirus testing. In his 2009 interview with Cort, patients with joint pain and positive rheumatoid factor weren’t recommended to trial this treatment. It makes sense that doctors are always fine-tuning the recommendations on their treatments.

      I guess there is still some possiblity for me to try this treatment with my positive ANA titers. I will wait for further word.

  7. Zac
    Mar 05 - 8:42 am

    Oh, one other question, Christine. Have you ever tried echinacea? It shook me up badly. I believe it overstimulated my immune system.

  8. Christine
    Mar 05 - 7:44 pm

    Hi Zac,

    At my 2nd appointment, Dr. Chia told me to back down my dose to 5 per day, since I had been experiencing exacerbated fatigue. I’m backing it down further at this point because I’ve been crashed about half the time the last month, and pain has returned the last few weeks. As I looked at the graph/chart I keep…I was doing better on 4-41/2. I am anxious to ask at my next appointment about the rheumatoid factor.

    Your comment about doctors fine-tuning treatment was very encouraging. It has proven true in Dr. Chia’s treatments since he began seeking a cause and cure for ME/CFS. I forget that he continues to do this. He relies not only on what his lab research shows, but gives a great deal of weight to what his patients report. The truth is, if he did nothing more than acknowledge that I know what I feel like physically each day, it is worth seeing him! But I am blessed to live near his office and, fortunately, he offers much more than that!

    With your high ANA titres, have you been diagnosed with lupus?

    No, I haven’t tried echinacea. Based on your experience, doesn’t look like a good idea!

    I’ve written the post on my 2nd appointment….so be looking for it. I’m confident Cort will post it at the appropriate time for the website.

    Thanks again for reading and encouraging. Encouragement is something each of us needs as we move through the ups and downs if this illness…especially when we’re having more downs than ups!

    Rest Well,
    Christine

  9. Zac
    Mar 09 - 8:47 am

    The ANA titers show a lupus pattern. I haven’t pursued a diagnosis in that area, though. I’m hoping they’ll solve the ME/CFS illness that I’ve had much longer. The positive ANA’s didn’t change any of my ME/CFS symptoms.

    Echinacea is probably fine for most people .. I just didn’t react well to it multiple times. Feels like overstimulation to me.

    Hoping Dr. C will make progress in treating enteroviruses combined with an autoimmune condition. Maybe treat a little of both at the same time. Or maybe treat the autoimmune first. I don’t know. Or maybe something completely different. Hoping he makes headway there.

    I’ve been noticing that the more pain the less fatigue. The less pain the more fatigue .. all other factors being equal, that is. I have learned to vote for less pain.

    Take care

  10. Kristy
    Oct 02 - 6:04 am

    My name is Kristy and I am a patient of Dr. Chia now for 12 years. I have been dx’d with Epstein Barr which is how I was referred to Dr. Chia. This doctor has such passion on this issue. After a panel of blood work Echovirus, Coxsackie and CMV also showed up. I had a biopsy of my stomach as well. Equalibrant didn’t work for me so he asked me to stop. I will try anything because I always ask myself why not me. Who else is going to do this for the generations behind me. I spent my 40′s in bed and I’m am working on not spending my 50′s in bed.

    I have tried all that he has had to offer. Some have given me a reprieve for a few months and some have not worked. One thing I have learned through this process is it’s not a cookie cutter deal. Not one size fits all.

    I am currently working with him on another treatment that is in a experimental stage. I am coming into my 4th month and I am finding that I am getting the only way I can explain it is energy surges. Which I have not had in quite a while. I feel hopeful. I believe in this doctor and his passion to help others.

    I’m happy to have Dr. Chia on my side working together to find something to either cure or at best put all this in remission. One thing I have noticed is at other times prior to this new treatment (I can’t name it because it is in it’s experimental stages) when Dr. Chia would put pressure on a certain part of my stomach I would about jump to the ceiling. I am happy to say, small but so BIG for me, last time I saw him 3 weeks ago, he put pressure in that same area and I felt no pain.

    Tomorrow I go have blood work done to check my liver, kidneys etc due to the treatment. He may extend the 4 months to 6 due to me handling it pretty well.

    Since I started this as well I went and bought a NutriBullet and have been juicing veggies and fruit with boosters of nuts, chia seeds (lol sorry that just sounded kinda funny). I pray pray pray for all of us and for Dr. Chia in all he does.

    Thank you for allowing me to share.

    • Marco
      Oct 03 - 9:25 am

      Thanks Kristy for sharing your experience and good luck with the new treatment. (This definitely is not a cookie-cutter disease :)) Please stop by again and let us know how you’re doing.

    • Christine
      Oct 04 - 4:55 pm

      Thank you, Kristy, for sharing your journey, thus far, with Dr. Chia. He has mentioned to me the possibility of a new treatment on the horizon. Thank you for being willing to give it a try ahead of others. It sounds very promising for you! And it’s very encouraging to know, as I suspected, that he doesn’t give up on his patients!

      I’ve got the same hot spots in my abdomen, which he checks every time I see him. There hasn’t been a change for me there…yet. So glad yours is better! That seems huge to me!

      Thanks for sharing about your juicing. I’m considering trying JuicePlus, which is dehydrated vegetables and fruit in capsule form…so your comments are very helpful. Apparently Dr. C thinks it’s a good idea? Would you share what he has said about it? Chia seeds huh? That IS funny! LOL : )

      If you don’t live far from Dr. C…we may practically be neighbors : )

      Blessings…
      Christine

      • Anna
        Oct 21 - 4:35 am

        I am writing from Italy, I have 25years old and I am seriously ill from 8 years.
        Can you please tell me how Lab Doctor Chia advises for the analysis and how many days to have it ready ?
        As I would like to take an appointment with him I would like to know all the
        analysis he requires, can you send me by e-mail the list ?
        I thank you very much if you will help me as in Italy we have no CFS doctors.
        best regards
        Anna

        • Cort Johnson
          Oct 22 - 11:42 am
          • Christine McLaughlin
            Oct 23 - 8:47 am

            I am not sure how Dr. Chia works with international patients, but I believe he does so. I would encourage you to contact his office through the information Cort has provided on this website.

            I will pray you are able to connect with him or another specialist who will be able to help you….perhaps one that is closer to home. And I will also pray that you have supportive family and/or friends to encourage you.

            Keep pressing on in hope, Anna!
            Christine

  11. Lisa
    Jan 15 - 4:37 pm

    Hi Everyone- I just picked up my first box of Equilibrant.
    I am nervous, though, to start them because I have read (and Dr Chia said) that you may be hit with a flare for a bit. Has everyone experienced this? And if so…do you know why the herbs would stress the immune system to allow for a flare?
    I’m traveling a ton for work for the next 5 weeks and can’t be feeling sick or “hit by a bus”!
    Thanks in advance!
    Lisa

  12. Christine
    Jan 16 - 12:05 am

    Hi Lisa!

    My experience with Equilibrant has been a flu-like flare-up 2-3 hours after taking a dose for about 3-4 days. Each time I raised the dose by a half, I got the same hit. I would level off and actually feel much better with more energy on the 5-6 days till I raised the dose usually on the 7th day. When I came to a dosage that did not bring relief after a week, I would then lower the dose by half. The idea is to find the right dose for you…but it is very much a roller coaster ride! When I had events or full schedules coming up…I would delay increases because of the expected flare-ups. These flare-ups are actually a good sign. As mentioned in my post above…it is evident the immune system is working to rebalance itself.

    After I found my “ideal” dose and stayed on it for several months, Dr. Chia has added other immune modulators and anti-virals. Each time I have added something new it was trial and error with both the new medication and with re-adjusting my Equilibrant dose. (My most recent experience will be posted in the next week. See also my posts which followed this first one for more info.)

    Dr. Chia told me when I began treatment with him that it would take about 2 years to discover what will help me and what will not….based on what was available at the time (14 months ago). It is all very individual and quite a ride! Personally, I wouldn’t attempt it without a physician’s supervision. There is a danger of being tipped into autoimmunity.

    Thanks for reading. I wish you the best in your Equilibrant journey!
    Christine

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