arrow21 Comments
  1. Rich Perillo
    Nov 23 - 1:47 pm

    Unfortunately, the doctor never mentions the ANS
    I have mentioned it many times here, that much can be achieved regarding heart rate and arrhythmia’s, by addressing the dysbiosis with supplements and the Atkins diet, over time, for example. RP

    • Cort Johnson
      Nov 23 - 7:32 pm

      Rich, can you say why the Atkins diet would help heart rate and arrythmias?

      • Esmé de Groot
        Nov 28 - 1:17 pm

        My probiotics sure have an impact on my heart rate!

        • Cort Johnson
          Nov 28 - 1:27 pm

          No kidding! Have they calmed it down?

  2. Rich Perillo
    Nov 23 - 1:47 pm

    Unfortunately, the doctor never mentions the ANS
    I have mentioned it many times here, that much can be achieved regarding heart rate and arrhythmia’s, by addressing the dysbiosis with supplements and the Atkins diet, over time, for example. RP

    • Sharon
      Nov 24 - 10:13 am

      Rich, might you explain how exactly the Atkins diet and treatment for dysbiosis positively affect heart rate, etc?

  3. Guido den Broeder
    Nov 23 - 2:31 pm

    Our survey confirms that dizziness is a symptom in about 50% of ME patients.

    • Cort Johnson
      Nov 24 - 12:08 pm

      Thanks Guido…Is that a survey from a certain group?

  4. Carole
    Nov 24 - 10:23 am

    I don’t get the connection of the Atkins diet either. High Fat, high sodium . Anything that affects the heart to me would be more Fat and Triglycerides. I am doing just the opposite with Gluten free diet.

    Really would like to hear this too Cort.

    Thanks for any more info.

    Carole

    • Issie
      Nov 24 - 10:57 am

      That’s what my research uncovered too as for fat in the diet. Animal products are high in fat. And even those that are not, our body has to work over hard to process and break down properly. With me having CKD it was sort of the next in line thing to go to a vegan diet and that’s improving everything for me.

      Issie

      • Cort Johnson
        Nov 24 - 12:09 pm

        I can definitely see animal products taking more energy to break down…

        I know that some fats are bad for the cardiovascular system. (Are they all bad?)

        What do fats have to do with biofilms? (Sorry if I missed that before.)

        • Issie
          Nov 25 - 2:02 am

          My doc has found that magnesium, arginine and fat increases the strength of the protozoa and that will increase biofilms. There was a conferemce on this in 2012 and reported on by Betterhealthguy, but I’m just learning how to use this tablet and cant get the link to download. I’m supposed to keep my fat down to 20 g a day. My doc has found that any more than this helps to support what we dont want there. Since I’ve been doing this for awhile now, when I’ve messed up and had more fat or included meat in my diet as a splurge, I can sure tell that the spluge isnt worth how miserable it makes me feel and how much more I hurt and the intestional issues I get from it. To think I was doing this to myself for so many years.

          Issie

  5. Carole
    Nov 24 - 10:31 am

    Since I have a problem with Beta Blockers- If I start to have HR and Palpitations. I can take small amount of Magnesium- 5 mg Valium, drink Gatoraide (sometimes ) Lie down and mine gets better.

    Also back with my CPAP machine and it has almost completely alleviated Palpitations at night .
    Had machine retitrated to low pressure 5-8 which is all I needed.

    Dizziness to me comes with stress and overdoing. I do the same thing . Only sitting up on bed NOT lying with head down and no quick turns.

    Carole

    • Issie
      Nov 24 - 10:51 am

      Beta blockers can cause a degranulation of mast cells and most of us with MCAS cant take them.

      Issie

  6. Issie
    Nov 24 - 10:46 am

    Another nice review. I appreciate that you are bringing to light problems assocoated with POTS, as that’s why I joined this site to try to get the word out about it. The more people are aware of something the more chances we have of others taking notice and us finding a cure.

    One thing that is happening with myself and my quest for better health is I have noticed that my neuropathies are getting better. Since my blood flows are improving and I dont have as much pooling in my legs and feet. I find that a neoprene abdominal binder is a great help for splanic pooling. (Got mine at Ross.)

    I know there are alot of opinions on diet, but what I’m doing is working.

    Issie

  7. snu
    Dec 01 - 1:34 am

    thanks Cort for finding the best info, and making it easy to read :)

    • Cort Johnson
      Dec 01 - 8:57 am

      Thanks Snu!

  8. Joan Gibson
    Dec 18 - 12:12 am

    Greetings-
    Cfs :childhood(concussion), CFS, age29,Hong Kong flu,relapse and 1975,concussion,permanent disability. Limited time available for site but find it helpful. I would note following concussion I had multiple auto-immune symptoms. Needless to say I find the viral origin vs. other causes not useful.
    Currently re-researching as accident(5 broken ribs) precipitated relapse with new symptom of air hunger. Recently was in Palm Springs and was ‘normal’,eg,3 glasses of wine ( normally one sip makes me I’ll l),dancing ,etc.. Amazing! At high altitude total inertia. Did hyperberric research and was disappointed. Any recommendations?
    I discovered years ago pms Midol was better then codeine etc. for migraines,ankle spasms,etc. It contains pyriline maleate,an anti histamine ,for cramping. In France,cfs was referred to as spasmophilia( considered psychosomatic but does capture common symptom). I also had an hiatal hernia and continue to have esophageal spasm. I have a rarely prescribed and effective treatment ,if interested.
    My question: Is there info on subject of antihistamine in CFS. I found old(don’t have date) article where a physician treated CFS S with pyrilamine maleate resulting in significant improvement re:cfs he considered a neuro inflammatory condition. I would take it daily for brain fog but it is only found in combo. Any suggestions much appreciated.

    I’m a retired psychologist,background in neuropsychology,clinical hypnosis.

    • Cort Johnson
      Dec 18 - 10:31 am

      This sounds like mast cell stuff. I will pass this one…

  9. […] Health Rising recently had a nice article published on Nov 1, 2013 on the research of Dr.Visser on this common symptoms of CFS patients. Later in the month there was also a video. […]

  10. Toni
    Jan 10 - 3:34 pm

    I have diagnosis of FM, not CFS, and dysautonomia. I had a TTT several years back as an EP noted clinical symptoms of POTS at my first office visit (I had already figured that out). My TTT was ‘negative’, I was up for 45mins, and will never understand how my h/r remained at 76 (considering my anxiety) but, my b/p went high 167/112, and, I was somewhat symptomatic during. I was having a really good day. My PCP and Neuro do not agree with the TTT being definitive, neither do I. I live it. In my self studies the past 12 years I’ve read that POTS does not always behave the same when patient has FM also. I ‘believe’ FM and dysautonomia to be one and the same.

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